Quantitative assessment of visual designs for communicating patient-reported outcomes in breast cancer care to patients [0.03%]
乳腺癌护理中定量化评估视觉设计以向患者传达患者报告结果的影响
Lea Doppelbauer,Anna Maria Hage,Maria Margarete Karsten et al.
Lea Doppelbauer et al.
Development and validation of a patient-reported-experience measure to ascertain treatment satisfaction in migraine: the MISAT-Q questionnaire [0.03%]
偏头痛治疗满意度患者报告结果测量工具的开发及验证：MISAT-Q问卷
Ana B Gago-Veiga,Nuria González-García,Javier Díaz-de-Terán et al.
Ana B Gago-Veiga et al.
Background: The patient's perspective is increasingly relevant in health decision making. In daily practice, care of patients with migraine should include evaluation of their satisfaction with acute and preventive treatme...
The patient reported intraocular lens questionnaire (PR-ILQ): content validity, psychometric performance, and use in a regulated clinical trial to evaluate safety and effectiveness outcomes [0.03%]
患者报告的晶状体问卷（PR-ILQ）：内容有效性，心理测量性能及其在监管临床试验中用于评估安全性和有效性的应用
Alan L Shields,Nina Galipeau,Leighann Litcher-Kelly et al.
Alan L Shields et al.
Background: Patient-reported outcomes (PROs) are underutilized in medical device evaluations, including in ophthalmology and intraocular lens (IOL) replacements. This article summarizes research conducted to develop the P...
Advancing observer-reported outcome measurement: development of the MOOD-AS for observing distress in Angelman syndrome [0.03%]
增进观察者报告结果测量法的发展：在安格曼综合征中使用MOOD-AS评估痛苦的发展研究
Sean N Halpin,Doesjka A Hagenaar,Sarah Nelson Potter et al.
Sean N Halpin et al.
Including people with lived experience in the development of the self-Dehumanisation in Psychosis Scale (DiPS): a reflective account [0.03%]
精神分裂症患者自我非人化量表(DiPS)的开发中纳入有生活经历的人：反思性报告
Tom A Jenkins,Anneli Bale,Linda Alush et al.
Tom A Jenkins et al.
Background: Lived experience involvement in measure development is recognised as best practice. This article is a reflective account, co-written between researchers and PPIE (Patient and Public Involvement and Engagement)...
Development and initial validation of the Communication Inventory Disability - Observer Reported (CID-OR): a measure of communication in CDKL5 deficiency disorder [0.03%]
CDKL5缺陷症沟通障碍评定量表（观察者报告版）的编制及初步验证研究
Jenny Downs,Jessica Keeley,Peter Jacoby et al.
Jenny Downs et al.
Patient-reported outcome and experience measures in cardiovascular disease: a scoping review as part of iCARE4CVD [0.03%]
心血管疾病领域患者报告结果和体验测量指标的研究概述（iCARE4CVD项目）
Bianca Steiner,Anne Neumann,Markus Schwertfeger et al.
Bianca Steiner et al.
Background: Patient-reported outcome and experience measures (PROMs and PREMs) are increasingly acknowledged as vital instruments for assessing the quality of care for cardiovascular diseases (CVD). These measures include...
A qualitative interview study exploring the lived experiences of adults, adolescents, and children with chronic inducible cold urticaria [0.03%]
一项定性访谈研究：探究成人、青少年和患有慢性诱导性冷荨麻疹的生活体验
Ashna Alladin,Isabelle Guillemin,Chien-Chia Chuang et al.
Ashna Alladin et al.
Background: Chronic inducible cold urticaria (ColdU) is characterized by itchy wheals (hives) with or without angioedema induced by cold exposure. It severely impacts patients' health-related quality of life (HRQoL). Qual...
Real-world burden of disease, treatment, and healthcare resource utilization in acromegaly: a quantitative survey of patient experiences [0.03%]
肢端肥大症的疾病负担、治疗和医疗资源利用情况及患者体验量化调查
Maxwell Koobatian,Jill Sisco,Janetricks C Okeyo et al.
Maxwell Koobatian et al.
Background: Acromegaly is a rare endocrine disease caused by excessive growth hormone (GH) secretion typically due to a pituitary adenoma. Patients ineligible for or with an inadequate response to surgery and/or radiother...
Questioning the questionnaire: a Dutch national survey on generic patient-reported outcome measures in traumatology [0.03%]
对问卷的质疑：荷兰全国创伤学通用患者报告结果测量调查
Thymen Houwen,Jan C van Ditshuizen,Roos J M Havermans et al.
Thymen Houwen et al.
Background: PROMs are fairly new in medical practice. In trauma surgical care in the Netherlands, it is unknown to what extend (generic) PROMs are embedded into clinical care. This study evaluates the awareness of generic...