Development of the long COVID - 6 dimensions quality of life (LC-6D-QoL) scale: a Delphi study [0.03%]
长期新冠肺炎六维度生活质量(LC-6D-QoL)量表的发展：德尔菲研究
Esther Ortega-Martin,Javier Alvarez-Galvez
Esther Ortega-Martin
Background: Long COVID significantly impairs quality of life through multi-systemic complexity, including fatigue, cognitive dysfunction, and dysautonomia. Existing generic tools fail to capture these manifestations, limi...
Cross-cultural adaptation and psychometric properties of the Vietnamese version of the Lower Extremity Functional Scale (LEFS) in individuals with knee osteoarthritis [0.03%]
越南膝骨关节炎患者的下肢功能量表(LEFS)的跨文化改编及测量属性心理计量学性质研究
Van Phat Huynh,Thi Diep Tran,Komsak Sinsurin et al.
Van Phat Huynh et al.
Objective: To translate, cross-culturally adapt, and examine the psychometric properties of the Vietnamese version of the Lower Extremity Functional Scale (LEFS-V) in individuals with knee osteoarthritis (KOA). ...
Patient perspectives on electronic patient-reported outcome-based symptom management after lung cancer surgery: a qualitative study [0.03%]
基于电子患者报告结果的肺癌术后症状管理患者的视角：定性研究
Yadi Zhang,Xin Gao,Cheng Lei et al.
Yadi Zhang et al.
Background: Patients frequently experience severe symptoms after lung cancer surgery. Symptom management using electronic patient-reported outcomes (ePRO) can improve postoperative symptom burden, enhance functional statu...
Goal attainment scaling in the heart failure and stroke resilience caregiver intervention pilot study [0.03%]
心脏衰竭和卒中韧性护工干预试点研究中的目标实现评分法
Catherine A Clair,Samantha N Curriero,Martha Abshire Saylor
Catherine A Clair
Background: Caregivers often serve as proxies for patients or inform patient-caregiver dyadic findings in interventions. We conducted a randomized waitlist control pilot of a caregiver support program focused on caregiver...
Patient-reported outcomes in chronic GVHD: instruments, clinical utility, and survivorship integration [0.03%]
慢性移植物抗宿主病中的患者报告结果：评估工具、临床效用及长期生存期的整合
Xiaoli Liang,Shiqin Huang,Ruihao Huang et al.
Xiaoli Liang et al.
Chronic graft-versus-host disease (cGVHD) is a leading driver of long-term morbidity after allogeneic transplantation. This review synthesizes evidence on patient-reported outcomes (PROs) across organ systems and survivorship domains, appra...
Refining a multimedia patient-reported outcomes measure for patients with low literacy [0.03%]
改进多媒体患者报告结果测量以适应低读写能力患者
Chao Long Azad,Aygul Iskandarova,Caroline Wu et al.
Chao Long Azad et al.
Background: Patients with low literacy have difficulty completing patient-reported outcomes measures (PROMs). The Multimedia Adaptation Protocol (MAP) guides the process of adapting traditional PROMs to multimedia version...
Patient engagement for quality improvement and knowledge translation in paediatric orthopaedic care - a patient partner led initiative [0.03%]
儿科骨科护理中的质量改善和知识转化患者参与——一项以患者为主导的倡议项目
Marisa Wong,Philippa Crerar,Anthony Philip Cooper et al.
Marisa Wong et al.
Background: In healthcare, a shift towards patient-centric models has gained traction, emphasizing patient empowerment. This is exemplified by initiatives such as the Canadian Institutes of Health Research (CIHR) Strategy...
Face validity of the EQ health and wellbeing instrument (EQ-HWB) in Hong Kong [0.03%]
香港EQ健康与幸福量表（EQ-HWB）的表面效度研究
Eliza Lai-Yi Wong,Annie Wai-Ling Cheung,Amy Yuen-Kwan Wong et al.
Eliza Lai-Yi Wong et al.
Background: The EuroQol Health and Wellbeing (EQ-HWB™) measures quality-of-life (QoL) across healthcare and social care settings. Its framework integrates physical, social, and psychological domains, shaped by cultural i...
Patient satisfaction following gender affirming facial surgery: a GENDER-Q and gender preoccupation and stability questionnaire study (GPSQ) [0.03%]
性别重置面部手术后的患者满意度：一项GENDER-Q和性别困扰及稳定性问卷研究（GPSQ）
Helia C Hosseini,Thayer J Mukherjee,Paula Flores-Perez et al.
Helia C Hosseini et al.
Background: Gender-affirming facial surgery (GAFS) addresses gender dysphoria by aligning facial features with gender identity, with historical emphasis on refining the upper facial third to render patients more attractiv...
A generic and adaptable model of developing, implementing, and maintaining patient-reported outcomes in clinical practice - the AmbuFlex model [0.03%]
一种在临床实践中开发、实施和维护患者报告结果的通用且可适应的模型-AmbuFlex模型
Liv Marit Valen Schougaard,Anne Jessen,Anne Treschow Phillipsen et al.
Liv Marit Valen Schougaard et al.
Background: Patient-reported outcomes (PROs) are aspects of health status reported directly by patients. Over the last decade, PROs have been increasingly used in clinical practice. AmbuFlex - Centre for Patient Reported ...