KERMIT: Performance indicators in electronic patient reported outcome measures: a modified Delphi [0.03%]
KERMIT：电子患者报告结局测量中的绩效指标：一种改良德尔菲法研究
Nathaniel Luke Hatton,Mark Baxter,Sally Lewis et al.
Nathaniel Luke Hatton et al.
Introduction: The use of electronic patient reported outcome measures (ePROMs) is increasing in routine cancer care, with benefit demonstrated in improving patient survival, satisfaction and response time. ePROMs represen...
Health-related quality of life outcomes among vedolizumab-treated patients with inflammatory bowel disease in the UK and Ireland: a 52-week observational study (OCTAVO) [0.03%]
英国和爱尔兰 vedolizumab 治疗克罗恩病和溃疡性结肠炎患者的健康相关生命质量结果——一项为期 52 周的观察性研究（OCTAVO）
Gareth Parkes,Ayesha Akbar,Ian Beales et al.
Gareth Parkes et al.
Background: Vedolizumab is a gut-selective, anti-lymphocyte trafficking biologic therapy for inflammatory bowel disease (IBD). Clinical trials have demonstrated the positive impact of vedolizumab on patient quality of lif...
Observational Study
Journal of patient-reported outcomes. 2025 Jul 1;9(1):80. DOI:10.1186/s41687-025-00846-9 2025
Investigating themes in hearing quality of life with user-nominated goals on the Glasgow Hearing Aid Benefit Profile (GHABP) [0.03%]
基于glasgow助听器效益量表（ghabp）的用户提名目标在听力生活质量主题中的研究
Avivah J Wang,Grace Strong,Kayla W Kilpatrick et al.
Avivah J Wang et al.
Background: The Glasgow Hearing Aid Benefit Profile (GHABP) is a patient-reported outcome measure (PROM) that was developed for the assessment of hearing aid efficacy using standard goals and user-nominated goals. The obj...
Bowel urgency in ulcerative colitis: effect of baseline urgency and change in urgency in response to mirikizumab [0.03%]
乌塞替珠单抗对溃疡性结肠炎患者基线急迫感及治疗后急迫感变化的影响
David B Clemow,Marla C Dubinsky,Simin K Baygani et al.
David B Clemow et al.
Background: Mirikizumab has demonstrated efficacy in moderately to severely active ulcerative colitis. A 1-2-point change in Urgency Numeric Rating Scale (NRS) score can be meaningful for patients. In these post-hoc analy...
NASH-CHECK patient-reported outcome instrument: evaluation of content and face validity for patients with metabolic dysfunction-associated steatohepatitis and compensated cirrhosis [0.03%]
用于代谢功能紊乱相关肝硬化患者的纳什检测患者报告结局工具的内容有效性和表面有效性评估
Lynda C Doward,Matthew Breckons,Maria-Magdalena Balp et al.
Lynda C Doward et al.
Background: NASH-CHECK is a patient-reported outcome measure (PROM) that assesses symptoms and broader health-related quality of life (HRQOL) impacts of metabolic dysfunction-associated steatohepatitis (MASH), previously ...
Enhancing provider adoption of patient-reported outcome measures (PROMs) through implementation science: insights from two international workshops [0.03%]
通过实施科学促进患者报告结果测量(PROMS)为医疗提供者采纳：两次国际研讨会的启示
Angela C Wolff,Kate Absolom,Sara Ahmed et al.
Angela C Wolff et al.
Background: Although the use of patient-reported outcome measures (PROMs) in practice is increasing, successful implementation is contingent on engaging healthcare providers (HCPs). Using Implementation Science (IS), we p...
Decline in quality of life among caregivers of patients undergoing chemotherapy for incurable cancer: implications for early social and medical support [0.03%]
晚期癌症化疗患者的照顾者生活品质下降：早期社会及医疗支持的启示
Nobumichi Takeuchi,Saiko Kurosawa,Sonomi Yoshida et al.
Nobumichi Takeuchi et al.
Background: Recent advances in cancer treatment have extended patient survival and improved quality of life (QOL), often enabling home-based chemotherapy. However, this shift places a growing burden on informal caregivers...
Observational Study
Journal of patient-reported outcomes. 2025 Jul 1;9(1):74. DOI:10.1186/s41687-025-00912-2 2025
Enhancing patient-centric care: the role of PROMs utilizing SRS-30 in pediatric scoliosis management [0.03%]
以SRS-30为基础的PROMs在特发性脊柱侧凸治疗中的应用及发展展望
Marina Rosa Filezio,Ramyn Jooma,Paul Fairie et al.
Marina Rosa Filezio et al.
Background: Scoliosis is defined by a curvature of the spine greater than 10 degrees. The most common type of scoliosis is called Adolescent Idiopathic Scoliosis and is found in individuals between 11 to 18 years of age. ...
Qualitative exploration of women's experiences of vasomotor symptoms to support the content validity of patient-reported outcomes [0.03%]
关于血管舒缩症状的定性探索以支持患者报告结果的有效性
Claudia Haberland,Melissa Barclay,Sophie Whyman et al.
Claudia Haberland et al.
Background: Frequency and severity of vasomotor symptoms (VMS; hot flashes) associated with menopause significantly impact women's health-related quality of life (HRQoL). Treatment benefit in VMS clinical trials is assess...
Internal consistency and structural validity of the parent-report preschool (2-4 years) Strengths and Difficulties Questionnaire in 1-year-old children [0.03%]
学龄前儿童(2-4岁)家长报告的 strengths and difficulties questionnaire 在1岁幼儿中的内部一致性和结构有效性分析
Sarah L Blower,Kate E Mooney,Nicole Gridley et al.
Sarah L Blower et al.
Background: Prevention and early intervention are key to addressing poor child mental health. Systematic reviews have highlighted a lack of brief, valid and reliable outcome measures that can be implemented in both resear...