Engaging patients, clinicians, and the community in a Clinical Data Research Network: Lessons learned from the CAPriCORN CDRN [0.03%]
开展临床数据研究网络的工作中与患者、医生和社区合作的经验教训——来自CAPriCORN CDRN的启示
Ellen Tambor,Madeleine Shalowitz,Joseph M Harrington et al.
Ellen Tambor et al.
Engaging patients, clinicians, and community members in the development of a research network creates opportunities and challenges beyond engagement in discrete learning activities. This paper describes our experiences establishing and main...
India and the United Kingdom-What big data health research can do for a country [0.03%]
印度和英国:大数据健康研究能为一个国家做什么
Souvik Bandopadhyay,Gudlavalleti Venkata Satyanarayana Murthy,Dorairaj Prabhakaran et al.
Souvik Bandopadhyay et al.
Introduction: Big data and growth in telecommunications have increased the enormous promise of an informatics approach to health care. India and the United Kingdom are two countries facing these challenges of implementing...
Preparing healthcare delivery organizations for managing computable knowledge [0.03%]
医疗卫生服务机构的可计算知识管理准备状况研究
Julia Adler-Milstein,Paige Nong,Charles P Friedman
Julia Adler-Milstein
Introduction: The growth of data science has led to an explosion in new knowledge alongside various approaches to representing and sharing biomedical knowledge in computable form. These changes have not been matched by an...
The value of learning health systems in disease control and aging: Closing guest commentary [0.03%]
学习健康体系在疾病控制和老龄化方面的价值:闭幕嘉宾评论
Masanori Fukushima
Masanori Fukushima
Use of EHRs data for clinical research: Historical progress and current applications [0.03%]
电子健康记录数据在临床研究中的应用:历史、现状和未来展望
Amy Harris Nordo,Hugh P Levaux,Lauren B Becnel et al.
Amy Harris Nordo et al.
The benefits of reusing EHR data for clinical research studies are numerous. They portend the opportunity to bring new therapies to patients sooner, potentially at a lower cost, and to accelerate learning health cycles-through faster data a...
Tangential headwinds when integrating industry-funded clinical trials into a US health care delivery system [0.03%]
将行业资助的临床试验融入美国医疗保健体系面临的阻力
David Vulcano
David Vulcano
Although there are regulatory obligations put forth by the US Food and Drug Administration (FDA) that directly govern clinical trials and other investigational therapies, such activity does not occur in a vacuum. There are other regulations...
The Global academic research organization network: Data sharing to cure diseases and enable learning health systems [0.03%]
全球学术研究组织网络:数据共享以治愈疾病和推动学习型医疗体系的发展
Masanori Fukushima,Christopher Austin,Norihiro Sato et al.
Masanori Fukushima et al.
Introduction: Global data sharing is essential. This is the premise of the Academic Research Organization (ARO) Council, which was initiated in Japan in 2013 and has since been expanding throughout Asia and into Europe an...
Development of a new seamless data stream from EMR to EDC system using SS-MIX2 standards applied for observational research in diabetes mellitus [0.03%]
使用SS-MIX2标准开发新型无缝数据流(从EMR到EDC系统),应用于糖尿病观察性研究
Kiyoteru Takenouchi,Keisuke Yuasa,Masahiro Shioya et al.
Kiyoteru Takenouchi et al.
Over the last decade, redundant entry of data in electronic medical records (EMR) for health care and electronic data capture (EDC) systems for research has been the typical medical research methodology. The corresponding data transcription...
Integrative LHS for precision medicine research: A shared NIH and Taiwan CIMS experience [0.03%]
精准医疗研究中的综合LHS:NIH与台湾CIMS的共享经验
Ueng-Cheng Yang,Tzu-Hung Hsiao,Ching-Heng Lin et al.
Ueng-Cheng Yang et al.
Introduction: Precision medicine is an important milestone toward the attainment of personalized medicine. A learning health system (LHS) may facilitate the evidence collection and knowledge generation process for disease...