Challenges of Patient Engagement in an HIV Clinical Research Program: A Qualitative Analysis of Stakeholder Accounts [0.03%]
艾滋病临床研究项目中患者参与的挑战——对各利益相关者访谈结果的质性分析
David Lessard,Kim Engler,Serge Vicente et al.
David Lessard et al.
Patient engagement (PE) promotes collaboration between stakeholders (researchers, patients, clinicians, etc). It often faces challenges due to tensions between its ethical/political and scientific underpinnings. This article explores how st...
Are We Involving Patients in Shared Decision-Making in Young Adult Hip Surgery? A Systematic Review of Patient Engagement Initiatives in Hip Preservation [0.03%]
年轻人髋关节保护手术中的患者共享决策：系统回顾
Aaron Alokozai,David N Bernstein,Linsen T Samuel et al.
Aaron Alokozai et al.
There are limited published studies on patient engagement, including shared decision-making, in adolescents and young adults with complex congenital or post-traumatic hip disorders. Despite the limited number of papers, we aim to clearly su...
Addressing Service Recovery Practice With Radiation Oncology Frontline Managers: A Project Brief [0.03%]
放射肿瘤科一线经理的服务恢复实践：项目概要
Charles Washington,Stephanie Benvengo,Kathleen Lynch
Charles Washington
The relationship between patient satisfaction, care compliance, and treatment outcomes suggests patients who report dissatisfaction perceive receipt of suboptimal care. Patient satisfaction plays a role in defining quality of care, affectin...
"I Live in Constant Fear of Highs," the Daily Impact of Type 1 Diabetes [0.03%]
“我活在高低血糖的恐惧之中”，一名一型糖尿病患者的日常生活
Allyson S Hughes,Jeoffrey Bispham,Ludi Fan et al.
Allyson S Hughes et al.
Limited research exists regarding the burdens associated with type 1 diabetes (T1D). The study's objective was to understand the impact of T1D from people with T1D and caregivers of minors with T1D. Six focus groups were conducted, with a t...
Patrick Oben
Patrick Oben
The patient experience is now globally recognized as an independent dimension of health-care quality. However, although patients, providers, health-care managers, and policy-makers agree on its importance, there is no standardized definitio...
The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada [0.03%]
患者咨询委员会在健康研究中的作用：来自加拿大两个省级咨询委员会的经验教训
Mike Warren,Toni Leamon,Amanda Hall et al.
Mike Warren et al.
This article describes two patient advisory councils (PACs) in Canada in order to contribute to the limited evidence base on how they might facilitate patient engagement in health research. Specifically, members of PACs from Newfoundland an...
Philosophical Hermeneutics and Teaching Through Behandlung: The Treatment and Handling of Patients With Care [0.03%]
诠释哲学与通过behandlung的教学：悉心对待患者的方式方法
Richard B Hovey,Rachel Szwimer,Mona Jillani et al.
Richard B Hovey et al.
The purpose of this Feature article is to share a teaching approach for academic researchers and clinicians about the treatment of patients beyond their biomedical needs. To achieve this objective, we will delve into the writings of H-G Gad...
Integrative Review of the Interventions for Improving Patients' Experiences Revealed in Quality Improvement Projects [0.03%]
质量改进项目中改善患者体验干预措施的整合式回顾研究
Jin Jun,Kailyn Stern,Maja Djukic
Jin Jun
Hospital Consumer Assessment of Healthcare Providers and Systems (HCAHPS) is the first national, standardized, publicly reported survey of patients' perspectives of hospital care closely linked to hospitals' reimbursement and reputation. Th...
Hearing the Voice of a Shadow Child: Healthy Siblings Experience of Cystic Fibrosis and Other Life-Threatening Conditions [0.03%]
听见阴影儿童的声音——健康兄弟姐妹体验囊性纤维化及其他生命威胁状况的感受研究
Andrew Cox,Colin Pritchard
Andrew Cox
Cystic fibrosis (CF) is a chronic, life-threatening disease, similar to other chronic life-disrupting pediatric conditions, and this creates physical and psychosocial problems for parents and the healthy sibling/s of the sick child, who oft...
Enhancing Your Webside Manner: Optimizing Opportunities for Relationship-Centered Care in Virtual Visits [0.03%]
改善您的在线接诊方式：优化以患者为中心的虚拟就诊机会
Mary Beth Modic,Katie Neuendorf,Amy K Windover
Mary Beth Modic
In the pandemic of coronavirus disease 2019, virtual visits have become the primary means of delivering efficient, high-quality, and safe health care while Americans are instructed to stay at home until the rapid transmission of the virus a...