A strategic stakeholder approach for addressing further analysis requests in whole genome sequencing research [0.03%]
全基因组测序研究中应对进一步分析请求的战略利益相关者方法
Bradley Steven O Thornock
Bradley Steven O Thornock
Whole genome sequencing (WGS) can be a cost-effective and efficient means of diagnosis for some children, but it also raises a number of ethical concerns. One such concern is how researchers derive and communicate results from WGS, includin...
The moral concerns of biobank donors: the effect of non-welfare interests on willingness to donate [0.03%]
生物样本库捐献者的伦理关注点——非福利利益对捐赠意愿的影响
Raymond G De Vries,Tom Tomlinson,H Myra Kim et al.
Raymond G De Vries et al.
Donors to biobanks are typically asked to give blanket consent, allowing their donation to be used in any research authorized by the biobank. This type of consent ignores the evidence that some donors have moral, religious, or cultural conc...
Erratum to: Islet Xeno/transplantation and the risk of contagion: local responses from Canada and Australia to an emerging global technoscience [0.03%]
关于胰岛移植和感染风险的更正：加拿大和澳大利亚对一种新兴全球科技的局部回应中的错误之处更正
Myra Cheng
Myra Cheng
Published Erratum
Life sciences, society and policy. 2016:12:2. DOI:10.1186/s40504-016-0035-5 2016
Parental perspectives on consent for participation in large-scale, non-biological data repositories [0.03%]
有关参与大规模非生物医学数据库共享的同意的家长视角研究
Kiran Pohar Manhas,Stacey Page,Shawn X Dodd et al.
Kiran Pohar Manhas et al.
Background: Data sharing presents several challenges to the informed consent process. Unique challenges emerge when sharing pediatric or pregnancy-related data. Here, parent preferences for sharing non-biological data are...
Ethical acceptability of research on human-animal chimeric embryos: summary of opinions by the Japanese Expert Panel on Bioethics [0.03%]
日本生物伦理学专家小组关于人兽嵌合体胚胎研究伦理可接受性的意见摘要
Hiroshi Mizuno,Hidenori Akutsu,Kazuto Kato
Hiroshi Mizuno
Human-animal chimeric embryos are embryos obtained by introducing human cells into a non-human animal embryo. It is envisaged that the application of human-animal chimeric embryos may make possible many useful research projects including pr...
Unexpected tissue and the biobank that closed: an exploration of value and the momentariness of bio-objectification processes [0.03%]
意想不到的组织和关闭的生物样本库：价值以及生物客体化过程的短暂性探讨
Neil Stephens,Rebecca Dimond
Neil Stephens
Unanticipated situations can arise in biobanking. This paper empirically documents unexpected situations at the anonymous biobank 'Xbank'. Firstly, Xbank received an unexpected and significant quantity of tissue from the historical archive ...
Bio-objectifying European bodies: standardisation of biobanks in the Biobanking and Biomolecular Resources Research Infrastructure [0.03%]
欧洲生物体的生物客体化——在生物样本库和分子资源研究基础设施中进行生物样本库标准化
Sakari Tamminen
Sakari Tamminen
The article traces the genealogy of the Minimum Information About Biobank Data Sharing model, created in the European Biobanking and Biomolecular Resources Research Infrastructure to facilitate collaboration among biobanks and to foster the...
Precaution, governance and the failure of medical implants: the ASR((TM)) hip in the UK [0.03%]
审慎、监管与医疗植入产品的失败——英国的ASR髋关节系统案例研究
Matthias Wienroth,Pauline McCormack,Thomas J Joyce
Matthias Wienroth
Hip implants have provided life-changing treatment, reducing pain and improving the mobility and independence of patients. Success has encouraged manufacturers to innovate and amend designs, engendering patient hopes in these devices. Howev...
The past and future of RRI [0.03%]
科研伦理的过去与未来
Arie Rip
Arie Rip
Within the space of a few years, the idea of Responsible Research and Innovation, and its acronym RRI, catapulted from an obscure phrase to the topic of conferences and attempts to specify and realize it. How did this come about, and agains...
The evolution of withdrawal: negotiating research relationships in biobanking [0.03%]
退而结约：生物样本库研究中的谈判与退出机制
Karen Melham,Linda Briceno Moraia,Colin Mitchell et al.
Karen Melham et al.
The right to withdraw from research, along with the necessity of adequately informed consent, is at the heart of the post-Nuremburg code of ethical safeguards in biomedical research on human participants. As biomedical research moves away f...