Governance of research consortia: challenges of implementing Responsible Research and Innovation within Europe [0.03%]
欧洲研究联盟中的科研治理：负责任的研究和创新的挑战性实施问题分析
Michael Morrison,Miranda Mourby,Heather Gowans et al.
Michael Morrison et al.
Responsible Research and Innovation ('RRI') is a cross-cutting priority for scientific research in the European Union and beyond. This paper considers whether the way such research is organised and delivered lends itself to the aims of RRI....
THE FUTURE OF MEDICINE, healthcare innovation through precision medicine: policy case study of Qatar [0.03%]
精准医疗在医学领域的未来——卡塔尔的医疗卫生创新政策案例分析
M Walid Qoronfleh,Lotfi Chouchane,Borbala Mifsud et al.
M Walid Qoronfleh et al.
In 2016, the World Innovation Summit for Health (WISH) published its Forum Report on precision medicine "PRECISION MEDICINE - A GLOBAL ACTION PLAN FOR IMPACT". Healthcare is undergoing a transformation, and it is imperative to leverage new ...
Good problems to have? Policy and societal implications of a disease-modifying therapy for presymptomatic late-onset Alzheimer's disease [0.03%]
好的问题？针对无症状期阿尔茨海默病的疾病修饰疗法的政策和社会影响
Misha Angrist,Anna Yang,Boris Kantor et al.
Misha Angrist et al.
In the United States alone, the prevalence of AD is expected to more than double from six million people in 2019 to nearly 14 million people in 2050. Meanwhile, the track record for developing treatments for AD has been marked by decades of...
The reconfiguration of biobanks in Europe under the BBMRI-ERIC framework: towards global sharing nodes? [0.03%]
在BBMRI-ERIC框架下欧洲生物样本库的重新配置：朝着全球共享节点发展？
Violeta Argudo-Portal,Miquel Domènech
Violeta Argudo-Portal
Freezers with biospecimen deposits became biobanks and later were networked at the pan-European level in 2013 under the Biobanking and BioMolecular Resources Research Infrastructure-European Research Infrastructure Consortium (BBMRI-ERIC). ...
What is the impact of patient recruitment on offshoring of clinical trials? [0.03%]
患者招募对临床试验外包的影响是什么？
Maryam Kermanimojarad
Maryam Kermanimojarad
The issue of globalization of research is receiving considerable attention due to the increasing number of offshored R&D activities from the United States, Europe, and Japan. This paper explores this phenomenon and provides a model to analy...
Consolidating RRI and Open Science: understanding the potential for transformative change [0.03%]
巩固RRI和开放科学：理解变革的潜力
Clare Shelley-Egan,Mads Dahl Gjefsen,Rune Nydal
Clare Shelley-Egan
In European research and innovation policy, Responsible Research and Innovation (RRI) and Open Science (OS) encompass two co-existing sets of ambitions concerning systemic change in the practice of research and innovation. This paper is an ...
Patrik Hummel,Matthias Braun
Patrik Hummel
This paper argues that data-driven medicine gives rise to a particular normative challenge. Against the backdrop of a distinction between the good and the right, harnessing personal health data towards the development and refinement of data...
How should researchers cope with the ethical demands of discovering research misconduct? Going beyond reporting and whistleblowing [0.03%]
研究人员应如何应对发现研究不端行为的伦理要求？超越报告和揭发 whistleblowing 应为 揭发不端行为 的正确翻译，因此最终答案是：研究人员应如何应对发现研究不端行为的伦理要求？超越报告和揭发不端行为
Knut Jørgen Vie
Knut Jørgen Vie
In this paper, I will argue that making it mandatory to report research misconduct is too demanding, as this kind of intervention can at times be self-destructive for the researcher reporting the misconduct. I will also argue that posing th...
Health is a political choice: why conduct healthcare research? Value, importance and outcomes to policy makers [0.03%]
健康是一种政治选择-为何开展医疗保健研究？价值、重要性及政策结果
M Walid Qoronfleh
M Walid Qoronfleh
This paper offers the Eastern Mediterranean Region (EMR) viewpoint with Qatar as a case for lasting transformation of health systems. The Qatar case study illustrates the importance of research in the development of health policy. It provid...
Allonymous science: the politics of placing and shifting credit in public-private nutrition research [0.03%]
匿名科学：公共和私人营养研究中署名的政治学说与转移现象
Bart Penders,Peter Lutz,David M Shaw et al.
Bart Penders et al.
Ideally, guidelines reflect an accepted position with respect to matters of concern, ranging from clinical practices to researcher behaviour. Upon close reading, authorship guidelines reserve authorship attribution to individuals fully or a...