Eric Deibel
Eric Deibel
The introduction of open source in the life sciences is increasingly being suggested as an alternative to patenting. This is an alternative, however, that takes its shape at the intersection of the life sciences and informatics. Numerous ex...
Ellen-Marie Forsberg
Ellen-Marie Forsberg
This article discusses outcomes of a dialogue conference on 'The road ahead for ELSA in Norway: Issues of quality, influence and network cooperation' held in Oslo in December 2012. Norwegian researchers in the field of ethical, legal and so...
Islet Xeno/transplantation and the risk of contagion: local responses from Canada and Australia to an emerging global technoscience [0.03%]
异体/移植岛和感染的危险：加拿大和澳大利亚对全球新兴科技科学的局部反应
Myra Cheng
Myra Cheng
This paper situates the public debate over the use of living animal organs and tissue for human therapies within the history of experimental islet transplantation. Specifically, the paper compares and contrasts the Canadian and Australian r...
Cord blood banking - bio-objects on the borderlands between community and immunity [0.03%]
徘徊在共同体与免疫性边界的胎盘血储存计划中的生物物件
Nik Brown,Rosalind Williams
Nik Brown
Umbilical cord blood (UCB) has become the focus of intense efforts to collect, screen and bank haematopoietic stem cells (HSCs) in hundreds of repositories around the world. UCB banking has developed through a broad spectrum of overlapping ...
'Pop-Up' Governance: developing internal governance frameworks for consortia: the example of UK10K [0.03%]
“弹出式”研究联盟的内部治理模式——英国UK10K计划案例分析
Jane Kaye,Dawn Muddyman,Carol Smee et al.
Jane Kaye et al.
Innovations in information technologies have facilitated the development of new styles of research networks and forms of governance. This is evident in genomics where increasingly, research is carried out by large, interdisciplinary consort...
Reflections on different governance styles in regulating science: a contribution to 'Responsible Research and Innovation' [0.03%]
关于规范科学的不同治理风格的反思——对“负责任的研究和创新”的贡献
Laurens Landeweerd,David Townend,Jessica Mesman et al.
Laurens Landeweerd et al.
In European science and technology policy, various styles have been developed and institutionalised to govern the ethical challenges of science and technology innovations. In this paper, we give an account of the most dominant styles of the...
Governing the research-care divide in clinical biobanking: Dutch perspectives [0.03%]
临床生物库研究与护理分离的治理：荷兰视角
Martin Boeckhout,Conor M W Douglas
Martin Boeckhout
Biobanking, the large-scale, systematic collection of data and tissue for open-ended research purposes, is on the rise, particularly in clinical research. The infrastructures for the systematic procurement, management and eventual use of hu...
Mairi Levitt
Mairi Levitt
The organ shortage is commonly presented as having a clear solution, increase the number of organs donated and the problem will be solved. In the light of the Northern Ireland Assembly's consultation on moving to an opt-out organ donor regi...
Aaro Tupasela,Karoliina Snell,Jose A Cañada
Aaro Tupasela
This article poses the question of whether biobanking practices and standards are giving rise to the construction of populations from which various biobanking initiatives increasingly draw on for legitimacy? We argue that although recent bi...
Health research access to personal confidential data in England and Wales: assessing any gap in public attitude between preferable and acceptable models of consent [0.03%]
英格兰和威尔士的健康研究获取个人保密数据的现状：评估公众态度中希望的理想同意模型与可接受的同意模型之间的差距
Mark J Taylor,Natasha Taylor
Mark J Taylor
England and Wales are moving toward a model of 'opt out' for use of personal confidential data in health research. Existing research does not make clear how acceptable this move is to the public. While people are typically supportive of hea...