Kyle J McKibbin,Bradley A Malin,Ellen Wright Clayton
Kyle J McKibbin
Biomedical researchers collect large amounts of personal data about individuals, which are frequently shared with repositories and an array of users. Typically, research data holders implement measures to protect participants' identities an...
Christopher Robertson,Daniel Scheitrum,Aleks Schaefer et al.
Christopher Robertson et al.
This research investigates the extent to which financial incentives (conditional cash transfers) would induce Americans to opt for vaccination against coronavirus disease of 2019. We performed a randomized survey experiment with a represent...
Psychiatric genetic essentialism and stigma in child custody proceedings: public views [0.03%]
儿童监护程序中精神病遗传本质论与污名化：公众观点
Maya Sabatello,Audrey Chao,Beverly J Insel et al.
Maya Sabatello et al.
The introduction of behavioral, including psychiatric, genetic information in American courts has gained traction but raises concerns of undue influence on judicial outcomes. We conducted a vignette-based survey of a nationally representati...
Expectations as techniques of legitimation? Imagined futures through global bioethics standards for health research [0.03%]
期望作为一种正当化手段？通过全球生物伦理标准展望卫生研究的未来形象
Mark L Flear
Mark L Flear
I argue that expectations or strong beliefs about what can occur, and the imaginaries they construct, can be shaped by organizations and used by them as techniques for public legitimation of their governance and regulatory activities. I adv...
Framing and legitimating EU legal regulation of human gene-editing technologies: key facets and functions of an imaginary [0.03%]
欧盟人类基因编辑技术法律监管的构念框架与合法化：关键面向与功能分析
Aurélie Mahalatchimy,Pin Lean Lau,Phoebe Li et al.
Aurélie Mahalatchimy et al.
Gene-editing technologies, ie those able to make changes in the DNA of an organism, are the object of global competition and a regulatory race between countries and regions. There is an attempt to craft legal frameworks protective enough fo...
Examining the power of the social imaginary through competing narratives of data ownership in health research [0.03%]
通过健康研究中数据所有权的竞争性叙述考察社会想象的力量
Annie Sorbie,Wifak Gueddana,Graeme Laurie et al.
Annie Sorbie et al.
This article explores the social imaginary in the context of data ownership and the (non-)delivery of the data sharing revolution in biomedicine. We contribute to this special issue on imaginaries by developing a method and paradigm of 'com...
Reimagining disability: the screening of donor gametes and embryos in IVF [0.03%]
重构残疾概念：体外受精供者配子和胚胎的筛选问题
Isabel Karpin,Roxanne Mykitiuk
Isabel Karpin
In this article, we examine how disability is figured in the imaginaries that are given shape by the reproductive projects and parental desires facilitated by the bio-medical techniques and practices of assisted reproductive technologies (A...
Regulating patient access to therapeutics in Denmark: a rhetorical analysis of welfare imaginaries in public controversy [0.03%]
丹麦患者获取药物治疗的监管：福利想象在公共争议中的修辞分析
Mathias Møllebæk
Mathias Møllebæk
In this article, I argue that the social imaginaries that inform biomedical regulation circulate not only in technical spheres populated by experts but that they are equally articulated (and vehemently contested) in national public spheres ...
Is the European Data Protection Regulation sufficient to deal with emerging data concerns relating to neurotechnology? [0.03%]
欧盟数据保护条例足够应对神经技术带来的新兴数据问题吗？
Stephen Rainey,Kevin McGillivray,Simi Akintoye et al.
Stephen Rainey et al.
Research-driven technology development in the fields of the neurosciences presents interesting and potentially complicated issues around data in general and brain data specifically. The data produced from brain recordings are unlike names a...
Early analysis of deemed consent: why Moorlock's critique is mistaken [0.03%]
析“推定同意”——兼驳Moorlock的批评观点
Jordan A Parsons
Jordan A Parsons