[Online conversations to understand the disease and promote the doctor-patient relationship] [0.03%]
[线上对话增进医患交流与患者对疾病的理解]
Cristina Cenci,Giuseppe Fatati
Cristina Cenci
An anthropologist's approach to patient engagement is different from that of other professionals. An anthropologist is used to asking himself apparently trivial questions that help deconstruct cultural constructs. In his work, narrative med...
Guendalina Graffigna
Guendalina Graffigna
Research on citizen and patient health engagement is growing and enriching with contributions from many different disciplines. Quantitative studies, even randomized studies, are demonstrating that, if the parameter of patient engagement is ...
Alberto E Tozzi
Alberto E Tozzi
The journey of chronic and of complex patients is full of hurdles which the available technologies may help to overcome. The scarce application of technologic innovations is mainly a cultural problem. However, innovations should be guided b...
Nello Martini
Nello Martini
The engagement of citizens and patients in health care was one of the ethical principles that led to the Healthcare Reform of 1978 in Italy. Since then, this principle has been constantly reaffirmed. Yet, the patient is not at the center of...
[Freedom to choose treatments in incurable disease.Summary. The lack of knowledge and application of legal and ethical norms have often justified behaviors of many health workers not adequate to the care needs of people with ALS or other incurable diseases, highlighting their cultural unpreparedness. The narration of the experience and reflections of a [0.03%]
[不可治愈性疾病患者的治疗选择权。总结。许多医护人员因缺乏法律和伦理规范的知识和应用，常无法满足肌萎缩性脊髓侧索硬化症或其他不治之症患者的需求，突显其文化上的无准备状态。一位护理人员对其经验与反思的叙述]
Laura Rigotti
Laura Rigotti
[Palliative care and end-of-life care: nurse, what are you looking for?] [0.03%]
[缓和医疗与临终关怀：护士，你想要什么？]
Gabriella Bordin,Paola Arcadi
Gabriella Bordin
Palliative care and end-of-life (EOL) care are highly requested in hospital, especially in the Internal Medicine wards, exposed, as they are, to receive elderly, frail patients affected by multiple chronic diseases and limited life expectan...
Luigi Lusiani
Luigi Lusiani
A large number of elderly patients end their life in general wards, where they hardly find appropriate for their specific needs. Physicians and nurses, irrespective of their specialization, should be able to provide the dying patients with ...
[The graduate school of medicine and palliative care: good news, but it's still not enough] [0.03%]
关于医学院的姑息治疗教育：好消息但仍然不够
Alfredo Zuppiroli
Alfredo Zuppiroli
The recent establishment of palliative care and medicine as a medical specialty to be taught in postgraduate courses starting from the 2021/2022 academic year in Italy is certainly good news. Some doubts arise, anyway, if the academic progr...
Franco Toscani
Franco Toscani
The spread of palliative care in Italy encountered many difficulties and took place outside - if not despite - the health establishment and medical academia. The lack of a recognized role has conditioned for years the work and lives of the ...
[There is no progress without school. Postgraduate specialization school completes the paradigm shift in palliative care] [0.03%]
没有学校就没有进步。研究生专业学校的建立完成了缓和医疗范式的转变
Marta De Angelis
Marta De Angelis
With the conversion of law decree no. 34 of 19 May 2020, bearing urgent measures concerning health, support to work and the economy, as well as social policies related to CoViD-19 epidemiological emergency, thanks to the approval of an amen...