The Multiple Odysseys in Research and Clinical Care for Neurogenetic Conditions [0.03%]
神经遗传疾病的多次奥德赛之旅在研究和临床护理中的体现
Anne C Wheeler
Anne C Wheeler
Neurogenetic conditions (NGC; e.g., fragile X, Angelman, Prader-Willi syndromes) represent the cause for intellectual or developmental disabilities in up to 60% of cases. With expanded diagnostic options and an increasing focus on the devel...
Language Skills Influence Transition Planning in Adolescents With Fragile X Syndrome [0.03%]
语言能力影响脆性X综合征青少年的过渡计划
Olivia Boorom,Heather Fielding-Gebhardt,Shelley Bredin-Oja et al.
Olivia Boorom et al.
Individuals with fragile X syndrome (FXS) and their parents have a range of experiences navigating the crucial transition period between adolescence and adulthood. Semistructured interviews of 47 mothers of adolescents with FXS (mean child ...
The Effects of Health Insurance Coverage on Workforce Engagement of Family Caregivers of Children With Intellectual Disability and Autism [0.03%]
健康保险对智力障碍和自闭症儿童的家庭照顾者工作投入的影响
Derek Nord,Kristin Hamre,John Andresen
Derek Nord
For many families of children with intellectual disability and autism (ID/ASD), private health insurance and public programs, such as Medicaid and the Children's Health Insurance Program (CHIP), are critical sources of support. The purpose ...
Sibling Relationship and Behavioral Adjustment in Families of Disabled Children: Cross-Lagged Associations [0.03%]
残疾儿童家庭中兄弟姐妹关系与行为调整的交叉滞后关联
Caitlin A Williams,Paul A Thompson,Nikita K Hayden et al.
Caitlin A Williams et al.
Cross-lagged panel designs were used to examine longitudinal and potential (bi)directional relationships between primary caregiver reported sibling relationship quality and the behaviors of children with intellectual disability (n = 297) an...
Implications of Using the BRIEF-Preschool With School-Age Children With Down Syndrome [0.03%]
使用BRIEF-学龄前儿童对唐氏综合症学龄儿童的影响研究
Anna J Esbensen,Emily K Schworer,Nancy R Lee et al.
Anna J Esbensen et al.
This study evaluated the appropriateness of scoring the Behavior Rating Inventory of Executive Function-Preschool (BRIEF-P) using age-equivalent scores generated from multiple measures of cognition and language among school-age children wit...
Emily J Hickey,Leann Smith DaWalt,Daniel Bolt et al.
Emily J Hickey et al.
Autistic individuals and their families are at risk for poor outcomes in employment and mental health and may be vulnerable to long-term effects of broader societal conditions. The aim of the current longitudinal study was to understand the...
Psychotropic Medication and Psychosocial Service Use Among Transition Age Youth With Autism Spectrum Disorder [0.03%]
处于过渡期的自闭症谱系障碍青少年的精神药物和心理社会服务使用情况
Emma R Plourde,Mir M Ali,Kristina D West
Emma R Plourde
People with autism spectrum disorder (ASD) experience high rates of psychotropic medication utilization and barriers to psychosocial services, yet limited literature explores use of these services and the association between a mental health...
Semi-Automatic Assessment of Vocalization Quality for Children With and Without Angelman Syndrome [0.03%]
天使人综合症患儿和正常儿童发音质量的半自动评估方法研究
Lisa R Hamrick,Amanda Seidl,Bridgette L Kelleher
Lisa R Hamrick
Automated methods for processing of daylong audio recordings are efficient and may be an effective way of assessing developmental stage for typically developing children; however, their utility for children with developmental disabilities m...
Food Insecurity and Health Outcomes of Children With Intellectual and Developmental Disabilities in the United States [0.03%]
美国智力和发育障碍儿童的食物不足及健康状况
Samina Dhuliawala,Nalin Payakachat,Jacob T Painter et al.
Samina Dhuliawala et al.
We aimed to (a) provide nationally representative estimates of food insecurity (FI) among children with intellectual and developmental disabilities (IDD), and (b) determine the association between FI and four health outcomes (overall health...
Associations Between Parenting Behaviors and Behavioral Problems in Young Children With Developmental Delays [0.03%]
家长育儿行为与发育迟缓幼儿的行为问题之间的关系
Mathew C Luehring,Laura Lee McIntyre
Mathew C Luehring
Children with developmental delays (DD) are at heightened risk for developing behavior problems, which contribute to parenting stress and caregiving burden. There is an established relation between parenting behaviors and child developmenta...