Domains of wheelchair users' socio-emotional experiences: Design insights from a scoping review [0.03%]
轮椅使用者社会情感体验的领域：来自范围审查的设计洞察力
Mohsen Rasoulivalajoozi,Carmela Cucuzzella,Morteza Farhoudi
Mohsen Rasoulivalajoozi
Background: Physical accessibility is not the only concern for wheelchair users (WUs); they also face barriers to social presence, such as challenges in social engagement and negative stereotypes. Identifying key domains ...
Lived experiences of patients, families and caregivers affected by inherited retinal diseases: A qualitative systematic review [0.03%]
受遗传性视网膜疾病影响的患者，家庭和护理人员的生活体验：定性系统评价
Qin Xiang Ng,Ansel Shao Pin Tang,Kai En Chan et al.
Qin Xiang Ng et al.
Background: Inherited retinal diseases (IRDs) are a heterogeneous group of genetic disorders, and a leading cause of vision impairment or blindness, affecting millions worldwide. Despite advances in understanding its phen...
Additive associations of number of chronic health conditions and disabilities with flourishing among adolescents in the U.S [0.03%]
慢性健康状况和残疾数量与美国青少年积极心理状态的加性关联研究
Xihe Zhu,Yahan Liang,Justin A Haegele
Xihe Zhu
Background: Flourishing, also known as thriving, has been recognized as an important indicator of behavioral and social well-being in adolescents. While the association of individual chronic health conditions and disabili...
Health disparities between autistic non-citizen adults and US citizens enrolled in Medicaid: An analysis of Medicaid claims data from 2017-2019 [0.03%]
自闭症非公民成年人与加入医疗补助的美国公民之间的健康差异：对2017-2019年医疗补助理赔数据的分析
Wei Song,Sha Tao,Carolina Villamil Grest et al.
Wei Song et al.
Background: This study addresses critical gaps in our understanding of how immigration status intersects with autism related to health outcomes. Objective...
How healthcare organizations provide disability accommodations to promote equitable care: A qualitative study [0.03%]
医疗组织如何提供残疾便利措施以促进公平护理的定性研究
Cristina A Sarmiento,Kori Eberle,Jennifer Oshita et al.
Cristina A Sarmiento et al.
Background: Federal laws require healthcare organizations (HCOs) to provide patients' disability accommodations when requested. However, patients' accommodations needs are often unmet, contributing to inequities in health...
Discretionary exclusion criteria in oncology clinical trials and exclusion of people with psychiatric and cognitive disabilities [0.03%]
肿瘤临床试验中的任意排除标准以及对具有精神和认知障碍的人的排除
Nicole D Agaronnik,Elyse R Park,Lisa I Iezzoni
Nicole D Agaronnik
Background: Clinical trial protocols often allow investigators discretion to determine whether individuals are eligible to participate. Objective: ...
Stakeholder perspectives on an adult cerebral palsy community registry: A qualitative study [0.03%]
成人脑瘫社区登记册的利益相关者观点：定性研究
Cristina A Sarmiento,Edward Hurvitz,Jocelyn Cohen et al.
Cristina A Sarmiento et al.
Background: The Cerebral Palsy Research Network (CPRN) community registry has yielded valuable information about changes in function and pain in adults with cerebral palsy (CP) through a patient-reported outcomes registry...
Health literacy in adults with a spinal cord injury or disorder: An updated and expanded systematic review [0.03%]
脊髓损伤或疾病成人中的健康素养：更新和扩展的系统评价
Georgina Edwards,Diana Dorstyn,Melissa Oxlad
Georgina Edwards
Background: The importance of health literacy in personal health management is widely recognised in the general population, yet remains poorly understood in some patient groups, including people with spinal cord injury or...
Impact of physical disability on transplant candidacy: A multi-institutional survey of transplant professionals [0.03%]
身体残疾对移植候选人资格的影响：对移植专业人士的多机构调查
Jessica Marengo,Joel Michael Reynolds,Liz Bowen et al.
Jessica Marengo et al.
Background: While the solid organ transplant evaluation process is designed to function equitably, discriminatory practices remain, resulting in disparities in access for persons with disabilities. Physical function and f...
Navigating a hidden disability: Lived experiences and challenges of adults with early stage inherited retinal diseases [0.03%]
导航隐藏的残疾：早期遗传性视网膜疾病成年人的生活体验和挑战
Mariam Bakir,Eden G Robertson,Ruofei Trophy Chen et al.
Mariam Bakir et al.
Background: Inherited retinal diseases (IRDs) are genetic conditions that typically cause vision loss in working-age adults, representing a unique hidden disability characterised by variable progression rates. ...