Maternal-fetal surgery for myelomeningocele longitudinal follow-up model: Mitigation of care fragmentation through care coordination and outcomes reporting [0.03%]
母胎手术治疗脊柱裂纵向随访模型:通过医疗协调和结果报告减少护理脱节
Jonathan Castillo,Mary M Locastro,Romain Corroenne et al.
Jonathan Castillo et al.
PurposeFollowing the Global Health Symposium at the Spina Bifida World Congress in 2023, the purpose of this work is to provide a historical overview and a state-of-the-art update on the current global practice of myelomeningocele (MMC) clo...
Towards a successful teledance program for youth with cerebral palsy: A mixed-method study with the instructor's perspective [0.03%]
面向脑瘫儿童的在线舞蹈课程的成功之路——以教师视角为主的混合研究方法探索
Annie Pouliot-Laforte,Claire Cherrière,Margaux Hebinck et al.
Annie Pouliot-Laforte et al.
PurposeDance is a leisure time physical activity (LTPA) known to improve motor, cognitive, and psychosocial functions in youth with cerebral palsy (CP). Online exercise or tele-programs are promising in overcoming the environmental barriers...
Reliability and validity of the Mini-Eating and Drinking Ability Classification System (Mini-EDACS) among Dutch preschoolers with cerebral palsy [0.03%]
荷兰学龄前脑瘫儿童迷你型进食和饮水能力分类系统(mini-EDACS)的可靠性和有效性
Floor van der Klift,Lynn B Orriëns,Bea Spek et al.
Floor van der Klift et al.
PurposeThis study aimed to translate the English version of the Mini-Eating and Drinking Ability Classification System (Mini-EDACS) into Dutch and assess its psychometric properties and applicability among preschool-aged children with cereb...
Improvement on the slopes: The impact of an adaptive snow sports program on children and young adults with disabilities [0.03%]
斜坡上的改进:自适应雪上运动项目对残疾儿童和年轻人的影响
Stephanie M Barton,Matthew J McLaughlin,Mark T Fisher
Stephanie M Barton
PurposeThis retrospective cohort study sought to examine participant skill and functional progression in an adaptive snow sports program for children and young adults with disabilities.MethodsOne hundred twelve individuals, majority male, w...
Clinical utility of a patient-reported outcome for assessing spasticity in a pediatric population [0.03%]
在儿科人群中评估痉挛的患者报告结果的临床应用价值
Elaine Hong Hatch,Ashlee M Jaffe,Laura A Prosser
Elaine Hong Hatch
PurposeThis study aimed to (1) examine the construct validity of the Zorowitz spasticity patient-reported outcome (PRO) scale in pediatric populations and (2) examine the scale's responsiveness to change in children to determine its clinica...
Rocking in a rocking chair activates trunk muscles in children with spinal cord injury and impaired trunk control [0.03%]
摇椅摇滚激活脊髓损伤和躯干控制受损的儿童的躯干肌肉
Johnathan J George,Andrea L Behrman,Beatrice Ugiliweneza et al.
Johnathan J George et al.
PurposeRocking in a rocking chair may facilitate trunk muscle activation in children with spinal cord injury (SCI). To assess this, children with SCI and typically developing (TD) children were evaluated for increases in trunk muscle activa...
Immersive virtual reality rehabilitation after lower limb surgery in paediatric patients [0.03%]
下肢手术后儿童患者的沉浸式虚拟现实康复
Ivan Phelan,Alicia Carrion-Plaza,Penny Jayne Furness et al.
Ivan Phelan et al.
PurposePatients who have undergone lower limb surgery require rehabilitation to regain movement and function in the affected leg. Unfortunately, physical rehabilitation can be painful, reducing compliance and recovery. This feasibility stud...
The process of adaptation: Parents' journey navigating their child's chronic health condition diagnosis [0.03%]
适应的过程:父母引导孩子应对慢性健康状况诊断的旅程
Amy L Thompson,Sarah L Smith
Amy L Thompson
PurposeThis study aimed to examine parents' perceptions and experiences navigating their child's chronic health condition diagnosis.MethodsResearchers used a qualitative research design, applying a phenomenological approach to interview 15 ...
Pediatric physical therapy during a pandemic: Assessing perceptions of providing services through telehealth [0.03%]
大流行期间的儿科物理治疗:通过远程医疗服务评估感知态度
Katelyn McNamara,Deborah E Thorpe
Katelyn McNamara
PurposeThis study aimed to identify the perceptions of pediatric physical therapists, identifying barriers and facilitators to providing telehealth services during the COVID-19 pandemic.MethodsUsing a mixed methods design, an online, nation...
Global burden of chronic non-communicable diseases: Prenatal care and beyond, numerous challenges besiege investigation across the care continuum [0.03%]
慢性非传染性疾病全球负担:从产前护理到后续护理,研究面临众多挑战
Jonathan Castillo,Judy K Thibadeau,Andrea Park et al.
Jonathan Castillo et al.
Recently, the National Institutes of Health (NIH) announced possible restructuring of indirect and administrative costs for funded research. Many entities have raised concern about the impacts that such funding restructuring may have on the...