Juli M Bollinger,Peter D Zuk,Mary A Majumder et al.
Juli M Bollinger et al.
A 2011 National Academies of Sciences report called for an "Information Commons" and a "Knowledge Network" to revolutionize biomedical research and clinical care. We interviewed 41 expert stakeholders to examine governance, access, data col...
Thought Leader Perspectives on Participant Protections in Precision Medicine Research [0.03%]
精准医学研究中关于受试者保护的观点领导者的视角
Catherine M Hammack,Kathleen M Brelsford,Laura M Beskow
Catherine M Hammack
Precision medicine research is rapidly taking a lead role in the pursuit of new ways to improve health and prevent disease, but also presents new challenges for protecting human subjects. The extent to which the current "web" of legal prote...
Angela G Villanueva,Robert Cook-Deegan,Jill O Robinson et al.
Angela G Villanueva et al.
Making data broadly accessible is essential to creating a medical information commons (MIC). Transparency about data-sharing practices can cultivate trust among prospective and existing MIC participants. We present an analysis of 34 initiat...
Letter From The Editor [0.03%]
编者来信
Ted Hutchinson
Ted Hutchinson
Mark Phillips,Bartha M Knoppers
Mark Phillips
Open science has recently gained traction as establishment institutions have come on-side and thrown their weight behind the movement and initiatives aimed at creation of information commons. At the same time, the movement's traditional ins...
Reed F Beall,Jonathan J Darrow,Aaron S Kesselheim
Reed F Beall
Medical Information Commons to Support Learning Healthcare Systems: Examples From Canada [0.03%]
医疗信息共享以支持学习型医疗体系——来自加拿大的实例
Tania Bubela,Shelagh K Genuis,Naveed Z Janjua et al.
Tania Bubela et al.
We explore how principles predicting the success of a medical information commons (MIC) advantaged or disadvantaged three MIC initiatives in three Canadian provinces. Our MIC case examples demonstrate that practices and policies to promote ...
Robert Cook-Deegan,Mary A Majumder,Amy L McGuire
Robert Cook-Deegan
A Study to Elicit Behavioral Health Patients' and Providers' Opinions on Health Records Consent [0.03%]
一项关于征求行为健康患者和提供商对于健康记录同意意见的研究
Maria Adela Grando,Anita Murcko,Srividya Mahankali et al.
Maria Adela Grando et al.