Marielle S Gross,Holly A Taylor,Cecilia Tomori et al.
Marielle S Gross et al.
To help eliminate perinatal HIV transmission, the US Department of Health and Human Services recommends against breastfeeding for women living with HIV, regardless of viral load or combined antiretroviral therapy (cART) status. However, cAR...
Mary A Majumder,Juli M Bollinger,Angela G Villanueva et al.
Mary A Majumder et al.
Meaningful participant engagement has been identified as a key contributor to the success of efforts to share data via a "Medical Information Commons" (MIC). We present findings from expert stakeholder interviews aimed at understanding barr...
James G Hodge,Chelsea L Gulinson,Leila Barraza et al.
James G Hodge et al.
Juli M Bollinger,Abhi Sanka,Lena Dolman et al.
Juli M Bollinger et al.
Accessing BRCA1/2 data facilitates the detection of disease-associated variants, which is critical to informing clinical management of risks. BRCA1/2 data sharing is complex and many practices exist. We describe current BRCA1/2 data-sharing...
A Belmont Reboot: Building a Normative Foundation for Human Research in the 21st Century [0.03%]
贝尔蒙特报告的重启：21世纪人类研究规范基础的构建
Kyle B Brothers,Suzanne M Rivera,R Jean Cadigan et al.
Kyle B Brothers et al.
Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons [0.03%]
充满希望与忧虑地构建可信医疗信息知识库——基于公众调查的观察与思考
Patricia A Deverka,Dierdre Gilmore,Jennifer Richmond et al.
Patricia A Deverka et al.
A medical information commons (MIC) is a networked data environment utilized for research and clinical applications. At three deliberations across the U.S., we engaged 75 adults in two-day facilitated discussions on the ethical and social i...
Do Community Treatment Orders in Psychiatry Stand Up to Principalism: Considerations Reflected through the Prism of the Convention on the Rights of Persons with Disabilities [0.03%]
透过《残疾人权利公约》看精神医学中的社区治疗令是否符合道义论原则？
Giles Newton-Howes
Giles Newton-Howes
Compulsory psychiatric treatment is the norm in many Western countries, despite the increasingly individualistic and autonomous approach to medical interventions. Community Treatment Orders (CTOs) are the singular best example of this, requ...
Angela G Villanueva,Robert Cook-Deegan,Barbara A Koenig et al.
Angela G Villanueva et al.
Advances in technologies and biomedical informatics have expanded capacity to generate and share biomedical data. With a lens on genomic data, we present a typology characterizing the data-sharing landscape in biomedical research to advance...
Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons [0.03%]
以患者为中心和建立信任对可持续的医疗信息共享的重要性
Amy L McGuire,Mary A Majumder,Angela G Villanueva et al.
Amy L McGuire et al.
Drawing on a landscape analysis of existing data-sharing initiatives, in-depth interviews with expert stakeholders, and public deliberations with community advisory panels across the U.S., we describe features of the evolving medical inform...