Family perceptions of prolonged hospitalization for children with complex chronic conditions: Between losses and adaptations in an uncertain future [0.03%]
复杂慢性病儿童长期住院的家庭感知：在不确定的未来中失去与适应之间的平衡
Danton Matheus de Souza,Rodrigo Dos Santos Nascimento,Ana Paula Scoleze Ferrer et al.
Danton Matheus de Souza et al.
The aim of this study was to understand the family perception and emotional impacts on caregivers of children with chronic conditions who remained hospitalized in intensive care units for an extended period. A qualitative, descriptive-explo...
The health and well-being of children with medical complexity and their parents' when admitted to inpatient care units: A scoping review [0.03%]
关于医疗复杂儿童及其父母住院期间的健康与福祉的系统综述式的回顾文章
Lyndsay Mackay,Tammie Dewan,Lauren Asaad et al.
Lyndsay Mackay et al.
Children with medical complexity (CMC) are regularly admitted to inpatient care units to receive medical care. While admissions for CMC and their parents can negatively impact their health and well-being, mapping of evidence in this area ap...
Screening pediatric patients to determine need for child life services using the pediatric emotional safety screener [0.03%]
使用儿童情感安全筛查表对儿科患者进行筛选以确定其是否需要儿童生活服务
Jennifer H Staab,Suhong Tong,Jennifer S Gerson et al.
Jennifer H Staab et al.
There can be adverse psychosocial outcomes for children who have negative healthcare experiences. Identifying children's risk for experiencing elevated distress early on when entering the healthcare setting would allow targeted, proactive s...
An evaluation of the impact of a cancer support specialist service on families of children with cancer and the multidisciplinary team in a children's health service in Ireland [0.03%]
爱尔兰一项针对儿童癌症患者家庭和多学科团队的癌症支持专家服务影响评估研究
Maryanne Murphy,Hugh Fulham-McQuillan,Agnes Higgins et al.
Maryanne Murphy et al.
The onset of childhood cancer is sudden and unexpected, and the effect on the family unit can be enormous as they embark on a major life transition. Families of children with cancer have a high level of psychosocial needs due to the many ch...
Interventions for improving treatment adherence in young people with inflammatory bowel disease (IBD): A systematic review of behaviour change theory and behaviour change techniques [0.03%]
改善炎症性肠病(IBD)年轻患者治疗依从性的干预措施:行为改变理论和行为改变技术的系统评价研究
Cassandra Screti,Lou Atkinson,Rachel Shaw et al.
Cassandra Screti et al.
Treatment adherence is important but challenging for young people with inflammatory bowel disease (IBD). Behavioural interventions may support adherence, leading to improved condition management. This review aimed to evaluate interventions ...
"When I gave him the insulin injection, I felt the pain in my heart": Experiences of parents of young children with type 1 diabetes in an Arab country [0.03%]
“当我给他注射胰岛素时，我感到心如刀绞”——阿拉伯国家父母养育患有一型糖尿病的幼儿的经历
Hala Mahmoud Obeidat,Haytham Mohammad Al-Oran,Ghadeer Hjazeen et al.
Hala Mahmoud Obeidat et al.
Type 1 diabetes mellitus in children is one of the most common chronic health conditions, requiring constant monitoring and care. Living with children who are diagnosed with chronic illness affects multiple aspects of parents' daily lives, ...
Factors associated with transition readiness among adolescents and young adults with spina bifida in South Korea [0.03%]
韩国脊柱裂青少年和年轻人过渡准备的影响因素
Eun Kyoung Choi,Yoonhye Ji,Eunyoung Jung et al.
Eun Kyoung Choi et al.
This study aimed to examine the factors associated with transition readiness based on the healthcare transition model among adolescents and young adults (AYAs) with spina bifida (SB) in the individual (self-management and self-efficacy), fa...
Enhancing father involvement by increasing flexibility: Meeting fathers halfway [0.03%]
通过提高灵活性来增强父亲的参与度：兼顾各方利益
Simon P Byrne,Alina Morawska
Simon P Byrne
Family caregivers' needs for information on pediatric cystic fibrosis: A qualitative study [0.03%]
儿童囊性纤维化家庭照顾者的资讯需求：量化研究
Samara Macedo Cordeiro,Helen Bras da Silva,Fernanda Machado Silva-Rodrigues
Samara Macedo Cordeiro
Cystic fibrosis (CF) affects not just patients but also their families, highlighting the need for a comprehensive care approach. This descriptive qualitative study aimed to explore the informational needs of family caregivers of children wi...
Investigating parental perspectives of the enablers and barriers to communication with their preterm infants: A narrative study [0.03%]
从父母的角度探索与早产儿沟通的促进因素和障碍：一项叙述性研究
Julia Petty,Celia Harding,Lisa Whiting
Julia Petty
Learning to communicate with infants in a neonatal unit setting is challenging. Parents need time and support to feel confident and acquire skills that enable them to care for, be close to, and communicate with their infant. This qualitativ...