Valedie Oray,Sara H Katsanis
Valedie Oray
As nations strengthen borders and restrict refugee admissions, national security officials are screening for fraudulent nationality claims. One tool to investigate nationality claims is DNA testing, either for claimed relationships or for a...
Relational solidarity and COVID-19: an ethical approach to disrupt the global health disparity pathway [0.03%]
关系团结与COVID-19：一种打破全球卫生不平等途径的伦理方法
Anita Ho,Iulia Dascalu
Anita Ho
While the effects of COVID-19 are being felt globally, the pandemic disproportionately affects lower- and middle-income countries (LMICs) by exacerbating existing global health disparities. In this article, we illustrate how intersecting up...
Researchers' perspectives on return of individual genetics results to research participants: a qualitative study [0.03%]
关于向研究对象汇报个体遗传学研究结果的研究者观点定性研究
Erisa Sabakaki Mwaka,Deborah Ekusai Sebatta,Joseph Ochieng et al.
Erisa Sabakaki Mwaka et al.
Genetic results are usually not returned to research participants in Uganda despite their increased demand. We report on researchers' perceptions and experiences of return of individual genetic research results. The study involved 15 in-dep...
Exploring values among three cultures from a global bioethics perspective [0.03%]
全球生物伦理视角下的三种文化价值观探究
Nico Nortjé,Kristen Jones-Bonofiglio,Claudia R Sotomayor
Nico Nortjé
The United Nations Educational, Scientific and Cultural Organisation's (UNESCO) Declaration on Bioethics and Human Rights refers to the importance of cultural diversity and pluralism in ethical discourse and care of humanity. The aim of thi...
Informed consent in genomic research and biobanking: taking feedback of findings seriously [0.03%]
基因组研究和生物样本库中的知情同意：认真对待反馈发现的重要性
Paulina Tindana,Cornelius Depuur,Jantina de Vries et al.
Paulina Tindana et al.
Genomic research and biobanking present several ethical, social and cultural challenges, particularly when conducted in settings with limited scientific research capacity. One of these challenges is determining the model of consent that sho...
Use of broad consent and related procedures in genomics research: Perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia [0.03%]
泛许可和相关程序在基因组学研究中的应用——赞比亚大学教学医院风湿性心脏病（RHDGen）研究中受试者观点透视
Oliver Mweemba,John Musuku,Bongani M Mayosi et al.
Oliver Mweemba et al.
The use of broad consent for genomics research raises important ethical questions for the conduct of genomics research, including relating to its acceptability to research participants and comprehension of difficult scientific concepts. To ...
What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda [0.03%]
非洲基因组研究中的良好伦理实践包括哪些内容？乌干达一项基因组研究的参与者观点
Rwamahe Rutakumwa,Jantina de Vries,Michael Parker et al.
Rwamahe Rutakumwa et al.
Previous research has consistently highlighted the importance of stakeholder engagement in identifying and developing solutions to ethical challenges in genomic research, especially in Africa where such research is relatively new. In this p...
Janet Seeley,Michael Parker
Janet Seeley
Assessing training needs in health research ethics: a case study from the University of Zambia School of Medicine [0.03%]
赞比亚大学医学院健康研究伦理培训需求评估：一项案例研究
Gershom Chongwe,Bornwell Sikateyo,Linda Kampata et al.
Gershom Chongwe et al.
In many settings, and perhaps especially in low-middle income countries, training institutions do not adequately prepare their students for the ethical challenges that confront them in professional life. We conducted a survey to assess the ...
The features and qualities of online training modules in research ethics: a case study evaluating their institutional application for the University of Botswana [0.03%]
博茨瓦纳大学研究伦理在线培训模块的特点和质量：一项案例研究及其机构应用评价
Dolly Mogomotsi Ntseane,Joseph Ali,Kristina Hallez et al.
Dolly Mogomotsi Ntseane et al.
Research ethics remains a cornerstone of the scientific enterprise as it defines the boundaries of responsible conduct of research. Our aim was to systematically identify, review and test online training courses in research ethics which cou...