Broad consent for biobank research in South Africa - Towards an enabling ethico-legal framework [0.03%]
南非生物样本库研究的广泛同意-迈向一个有利的伦理法律框架
Mantombi Maseme,Jillian Gardner,Safia Mahomed
Mantombi Maseme
Broad consent is permitted by the South African National Department of Health Ethics Guidelines but appears to be prohibited by section 13(1) of the Protection of Personal Information Act 4 of 2013. Additionally, the Act mandates that all p...
"'It is very difficult in this business if you want to have a good conscience': pharmaceutical governance and on-the-ground ethical labor in Ghana": a letter to editors [0.03%]
“做好事很難：加納藥物治理與基層伦理勞動”——致編輯部的一封信
Livia Maria de Souza Gonçalves,Felipe Felizardo Mattos Vieira,Ariadne Botto Fiorot et al.
Livia Maria de Souza Gonçalves et al.
Establishing effective pharmaceutical governance is a challenge for government agencies, private enterprises, and professionals working on the ground, demanding complex ethical decisions from the actors involved, especially in a lower-middl...
Participant views on practical considerations for feedback of individual genetic research results: a case study from Botswana [0.03%]
巴布韦个体遗传研究结果反馈的相关性及实际问题探讨——参与者视角案例分析
Dimpho Ralefala,Mary Kasule,Olivia P Matshabane et al.
Dimpho Ralefala et al.
Key to discussions around feedback of individual results from genomics research are practical questions on how such results should be fed back, by who and when. However, there has been virtually no work investigating these practical conside...
Ethical implications for children's exclusion in the initial COVID-19 vaccination in Ghana [0.03%]
加纳初始COVID-19疫苗接种中排除儿童的伦理影响
Samuel Asiedu Owusu
Samuel Asiedu Owusu
Bioethics provides various models of fair allocation of scarce health resources like COVID-19 vaccines. Even though these models are grounded in some ethical principles like justice and beneficence, there were severe inequalities in global ...
Ezieddin Elmahjub
Ezieddin Elmahjub
This article addresses the bioethical challenges raised by end-of-life care (EoLC) from the perspective of Islamic normativity. Rejecting positivist positions, it argues for the use of a flexible approach midway between a deontological conc...
Epistemic justice, African values and feedback of findings in African genomics research [0.03%]
非洲价值观、认识论正义与非洲基因组研究中的结果反馈
Cornelius Ewuoso,Ambroise Wonkam,Jantina de Vries
Cornelius Ewuoso
This article draws on key normative principles grounded in important values - solidarity, partiality and friendliness - in African philosophy to think critically and deeply about the ethical challenges around returning individual genetic re...
" It is very difficult in this business if you want to have a good conscience": pharmaceutical governance and on-the-ground ethical labour in Ghana [0.03%]
“如果你希望有一个好良心，在这个行业中做到这一点非常困难”——论加纳的药物管理及一线伦理劳工
Kate Hampshire,Simon Mariwah,Daniel Amoako-Sakyi et al.
Kate Hampshire et al.
The governance of pharmaceutical medicines entails complex ethical decisions that should, in theory, be the responsibility of democratically accountable government agencies. However, in many Low- and Middle-Income Countries (LMICs), regulat...
Ethical and practical considerations arising from community consultation on implementing controlled human infection studies using Schistosoma mansoni in Uganda [0.03%]
乌干达使用施氏叶虫实施人体感染研究的社区咨询中的伦理和实践问题考虑因素
Moses Egesa,Agnes Ssali,Edward Tumwesige et al.
Moses Egesa et al.
Issues related to controlled human infection studies using Schistosoma mansoni (CHI-S) were explored to ensure the ethical and voluntary participation of potential CHI-S volunteers in an endemic setting in Uganda. We invited volunteers from...
Himani Bhakuni
Himani Bhakuni
There appears to be a conflict between global bioethical principles and the local understanding and application of these principles, but this conflict has misleadingly been characterized through the east-west dichotomy. This dichotomy portr...
G Samuel,F Lucivero,A M Lucassen
G Samuel
This paper argues that as we move to redefine global bioethics, there is a need to be attentive to the ethical issues associated with the environmental sustainability of data and digital infrastructures in global health systems. We show tha...