Glycemic status and health-related quality of life (HRQOL) in populations at risk of diabetes in two Latin American cities [0.03%]
拉丁美洲两个城市的糖尿病高危人群的血糖状况和生活质量的研究
Luis A Anillo Arrieta,Karen C Flórez Lozano,Rafael Tuesca Molina et al.
Luis A Anillo Arrieta et al.
Purpose: To estimate the health-related quality of life (HRQOL) according to glycemic status, and its relationship with sociodemographic and clinical factors in a population at risk of developing type 2 diabetes (T2D). ...
A process-based approach to health-related quality of life as a "way of living" [0.03%]
一种基于过程的健康相关生活质量研究方法——作为“生活方式”的健康相关生活质量
R P Nolan,M J Sharpe
R P Nolan
Introduction: There is an historical initiative to establish common theoretical ground to support a framework for assessing health-related quality of life (HRQL). Our aim was to add to this effort with an analysis of theo...
A comparison of the Child Health Utility 9D and the Health Utilities Index for estimating health utilities in pediatric inflammatory bowel disease [0.03%]
儿童炎症性肠病中CHU-9D和HUI在估计健康效用方面的比较研究
Naazish S Bashir,Thomas D Walters,Anne M Griffiths et al.
Naazish S Bashir et al.
Purpose: Health utilities are challenging to ascertain in children and have not been studied in pediatric Crohn's disease (CD) and ulcerative colitis (UC). The objective was to assess discriminative validity by comparing ...
Trajectories of health-related quality of life and their predictors in adult COVID-19 survivors: A longitudinal analysis of the Biobanque Québécoise de la COVID-19 (BQC-19) [0.03%]
成人COVID-19康复者的健康相关生活质量及其预测因素：来自魁北克COVID-19生物库（BQC-19）的纵向分析
Pamela Tanguay,Simon Décary,Samuel Lemaire-Paquette et al.
Pamela Tanguay et al.
Purpose: A significant number of people will experience prolonged symptoms after COVID-19 infection that will greatly impact functional capacity and quality of life. The aim of this study was to identify trajectories of h...
Ethical and practical considerations related to data sharing when collecting patient-reported outcomes in care-based child health research [0.03%]
基于护理的儿童健康研究中收集患者报告结果的数据共享相关的伦理和实践考量
Shelley Vanderhout,Beth K Potter,Maureen Smith et al.
Shelley Vanderhout et al.
Purpose: The collection and use of patient reported outcomes (PROs) in care-based child health research raises challenging ethical and logistical questions. This paper offers an analysis of two questions related to PROs i...
Psychometric properties of the Reintegration to Normal Living Index for sepsis survivors [0.03%]
序贯性器官衰竭评分的量表特征分析及修正
Kathleen Streich,Christiane S Hartog,Carolin Fleischmann-Struzek et al.
Kathleen Streich et al.
Purpose: Return to a normal state of living is a key patient-relevant outcome for sepsis survivors. The Reintegration to Normal Living Index (RNLI) assesses self-perceived participation in patients with chronic disease, b...
A composite measure for patient-reported outcomes in orthopedic care: design principles and validity checks [0.03%]
骨科护理中的患者报告结果的综合衡量指标：设计原则和有效检查
Lukas Schöner,David Kuklinski,Alexander Geissler et al.
Lukas Schöner et al.
Background: The complex, multidimensional nature of healthcare quality makes provider and treatment decisions based on quality difficult. Patient-reported outcome (PRO) measures can enhance patient centricity and involvem...
A qualitative study of lived experiences and needs of advanced cancer patients in Malaysia: Gaps and steps forward [0.03%]
马来西亚晚期癌症患者的生活体验和需求定性研究：缺口与未来方向
Alene Sze Jing Yong,Mark Wing Loong Cheong,Ednin Hamzah et al.
Alene Sze Jing Yong et al.
Purpose: Due to the high burden of cancer-related suffering, it is paramount to understand the gaps in cancer care that lead to suffering. Advanced cancer patients have unmet needs and challenges that differ from those wi...
Development and validation of a measure of adolescent and young adult goal-based quality of life (MAYA-GQOL) [0.03%]
青少年和年轻人基于目标的生活质量测量（MAYA-GQOL）的开发和验证
Katie Darabos,Carole A Tucker,Lauren Brumley et al.
Katie Darabos et al.
Purpose: We developed and validated a measure assessing quality of life (QOL) through importance, attainability, and discrepancy of life goals among adolescents and young adults (AYA) with and without cancer. A specific g...
Quality of life and psychological distress of patients with advanced cancer in the Philippines [0.03%]
菲律宾晚期癌症患者的生活质量和心理困扰
Maria Fidelis Manalo,Sean Ng,Semra Ozdemir et al.
Maria Fidelis Manalo et al.
Purpose: This study aimed to describe the quality of life (QOL) and psychological distress (anxiety and depression) of Filipino patients with advanced solid cancers and identify sociodemographic and clinical-related facto...