The Personalized Priority and Progress Questionnaire (PPPQ): A personalized instrument for quality of life and self-management for use in clinical trials and practice [0.03%]
个性化优先级和进步问卷（PPPQ）：一种用于临床试验和实践中的生活质量及自我管理的个性化工具
Judith Tommel,Cinderella K Cardol,Andrea W M Evers et al.
Judith Tommel et al.
Purpose: The aim of this study was to develop and validate a brief personalized instrument that (1) defines patients' priorities for improvement, (2) measures progress in prioritized quality of life (QoL) and self-managem...
Post-discharge health assessment in survivors of coronavirus disease: a time-point analysis of a prospective cohort study [0.03%]
新型冠状病毒肺炎康复患者的出院后健康评估：前瞻性队列研究的时间点分析
Ramin Sami,Sina Arabi,Khojasteh Ghasemi et al.
Ramin Sami et al.
Purpose: The objective of this study was to quantitatively evaluate psychological and quality of life-related complications at three months following discharge in hospitalized coronavirus disease 2019 (COVID-19) patients...
Patient-reported mental health and well-being trajectories in oncology patients during radiation therapy: an exploratory retrospective cohort analysis using the Ontario Cancer Registry [0.03%]
放射治疗期间肿瘤学患者的患者报告的心理健康和幸福感轨迹：使用安大略癌症登记处进行的探索性回顾队列分析
Jae-Yung Kwon,Jacek Kopec,Jason M Sutherland et al.
Jae-Yung Kwon et al.
Purpose: Mental health and well-being trajectories are not expected to be homogeneous in diverse clinical populations. This exploratory study aims to identify subgroups of patients with cancer receiving radiation therapy ...
Characteristics of patients diagnosed with pancreatic cancer who access palliative care: An observational study [0.03%]
终末期胰腺癌患者接受姑息治疗的临床特征分析：一项观察性研究
Nadia N Khan,Sue M Evans,Liane J Ioannou et al.
Nadia N Khan et al.
Purpose: Despite the benefits of palliative care (PC) in pancreatic cancer, little is known about patients who access PC. This observational study examines the characteristics of patients with pancreatic cancer at their f...
Parent-youth convergence (and divergence) in reports about pediatric quality of life [0.03%]
父母与青年关于儿童生活质量报告的趋同（和分歧）
Rhonda C Boyd,Jason D Jones,Bridget A Makol et al.
Rhonda C Boyd et al.
Purpose: Researchers and service providers typically assess pediatric Health-Related Quality of Life (HRQOL) by collecting independent reports from parents and youth. An emerging body of work indicates that patterns of pa...
Quality of life with docetaxel plus cisplatin versus paclitaxel plus carboplatin in patients with completely resected non-small cell lung cancer: quality of life analysis of TORG 0503 [0.03%]
含多西他赛或紫杉醇的以顺铂为基础的辅助化疗方案对完全切除非小细胞肺癌患者生活质量的影响：TORG 0503研究中的生活质量分析结果
Ayako Matsuda,Kazue Yamaoka,Hideo Kunitoh et al.
Ayako Matsuda et al.
Purpose: The TORG0503 study was undertaken to select a preferred platinum-based third-generation regimen for patients with completely resected non-small cell lung cancer (NSCLC). This study aimed to describe the quality o...
China Health Related Outcomes Measures (CHROME): development of a descriptive system to support cardiovascular disease specific preference-based measure for the Chinese population [0.03%]
中国健康结果衡量体系(CHROME)：开发描述性系统以支持心血管疾病特异的基于偏好的测量指标在中国人群中的应用
Xue Li,Kun Zhao,Kexin Li et al.
Xue Li et al.
Purpose: Preference-based measures have been increasingly recommended to measure health outcomes for economic evaluation. However, none of existing cardiovascular disease (CVD)-specific health-related quality of life (HRQ...
Psychometrics of patient-reported bother from side effects of treatment single-items in industry-sponsored oncology trials [0.03%]
行业赞助的肿瘤学试验中单一条目评估患者报告的治疗副作用困扰的心理测量学属性
Peter C Trask,Tracy Holt,Timothy Pearman
Peter C Trask
Background: Improvements in cancer treatment have increased the number of cancer survivors, but also increased the long-term and late effects from cancer therapy. Patient reported "side effect bother" could be used to mea...
Measuring glaucoma quality of life in an Asian population using item banking: psychometric evaluation and computerized adaptive testing simulations [0.03%]
采用项目反应理论和计算机自适应测试评估青光眼生命质量量表亚洲人版本的信度及效度研究
Eva K Fenwick,Belicia Lim,Ryan E K Man et al.
Eva K Fenwick et al.
Purpose: To assess the psychometric properties of glaucoma-specific health-related quality of life (HRQoL) item banks (IBs), and explore their efficiency using computerized adaptive testing (CAT) simulations. ...
The use of PROMIS measures in clinical studies in patients with inflammatory arthritis: a systematic review [0.03%]
风湿性关节炎临床研究中PROMIS量表的应用：系统评价研究
M M H Teuwen,I R E Knaapen,T P M Vliet Vlieland et al.
M M H Teuwen et al.
Purpose: Although the use of Patient-Reported Outcomes Measurement Information System (PROMIS) measures is widely advocated, little is known on their use in patients with inflammatory arthritis. We systematically describe...