Health-related quality of life experiences in children with bladder exstrophy-epispadias complex: a Swedish focus group study [0.03%]
膀胱外翻-尿道上裂复合征儿童的生命质量体验——瑞典焦点小组研究
Ulrika Svenninghed,Elin Öst,Gundela Holmdahl et al.
Ulrika Svenninghed et al.
Purpose: Bladder exstrophy-epispadias complex (BEEC) is a rare urogenital malformation. Children risk long-term urinary and genital dysfunction. The study aimed to describe health-related quality of life (HRQoL) experienc...
Prognostic associations between patient-reported outcomes and overall survival among patients with advanced squamous non-small cell lung cancer: results from the RATIONALE-307 trial [0.03%]
晚期肺鳞癌患者报告结果与总生存期之间的预后关联性：来自RATIONALE-307研究的结果
Jie Wang,Xinmin Yu,Shiangjiin Leaw et al.
Jie Wang et al.
Purpose: In the RATIONALE-307 trial, favorable overall survival (OS) outcomes with tislelizumab plus chemotherapy versus chemotherapy alone have been reported, along with improvements in patient-reported outcomes (PROs), ...
Psychometric evaluation of the Mastocytosis Symptom Severity Daily Diary (MS2D2) in adults with nonadvanced systemic mastocytosis (NonAdvSM) [0.03%]
成人非晚期系统性 mastocytosis 患者中 Mastocytosis 症状严重程度每日日记（MS2D2）的心理测量学评价
James C Marcus,Cem Akin,Jenna Zhang et al.
James C Marcus et al.
Purpose: This study evaluated the measurement properties and ability to detect clinically meaningful change of the Mastocytosis Symptom Severity Daily Diary (MS2D2), a patient-reported outcome instrument designed to measu...
Caregiver contribution to patient self‑care and quality of life among informal carers of adult patients with inflammatory bowel disease: a cross‑sectional study [0.03%]
炎症性肠病成人患者的照护者对患者自我护理和生活质量的影响：一项横断面研究
Daniele Napolitano,Maria Francisca Murgiano Gonzalo,Alessio Lo Cascio et al.
Daniele Napolitano et al.
Purpose: Informal caregivers play a critical role in the management of adult patients with inflammatory bowel disease (IBD), yet the association between their contribution to patient self-care and their own health-related...
Translation and psychometric properties of the Chinese version of the inventory to measure and assess image disturbance in head and neck cancer (IMAGE-HN) [0.03%]
头颈部癌症患者形象紊乱评价量表的中国版信效度研究
Wenjie Xu,Shuman Wang,Yu Zhu et al.
Wenjie Xu et al.
Purpose: Head and neck cancer and its treatments often lead to significant functional and cosmetic changes, resulting in body image disturbance (BID), which is a prevalent and distressing psychosocial issue affecting up t...
From framework to practice: applying the proteus-practice framework to learn lessons for integrating PROs in clinical care [0.03%]
从理念到实践——运用Proteus-实践框架吸取在临床护理中整合PRO的教训
Anne L R Schuster,Claire Snyder,Lotte Haverman et al.
Anne L R Schuster et al.
Purpose: As the use of patient-reported outcomes (PROs) in clinical practice expands, there is a growing need to understand how PROs are being integrated across diverse healthcare settings. We aimed to use the PROTEUS-Pra...
A dyadic approach to understanding anxiety and child overall health in pediatric oncology: insights from an actor-partner interdependence model [0.03%]
从伴侣互依模型中了解儿科肿瘤学中的焦虑及儿童整体健康问题的二元方法
Anna L Olsavsky,Madeline R Peek,Kathleen E Montgomery et al.
Anna L Olsavsky et al.
Purpose: Though child and caregiver anxiety are known to contribute to child overall health, this has not been examined dyadically. This cross-sectional study dyadically examined anxiety (child-self, caregiver-self) and c...
Trends in cardiometabolic disease and health-related quality of life in the United States, 2001-2022 [0.03%]
2001至2022年美国心血管代谢疾病和健康相关生活质量的流行趋势
Danwei Yang,David D Kim
Danwei Yang
Purpose: To examine associations between cardiometabolic conditions and health-related quality of life (HRQoL) and evaluate temporal trends in condition-associated HRQoL decrements from 2001 to 2022. ...
Impact of response shift on change in patient-reported outcomes: a systematic review [0.03%]
响应变化对患者报告结果变化影响的系统综述
Mathilde G E Verdam,Jae-Yung Kwon,Lara Russell et al.
Mathilde G E Verdam et al.
Purpose: The aim of this systematic review is to provide insight into whether response shift impacts the conclusions about change in patient-reported outcome measures (PROMs) in terms of statistical significance, magnitud...
Psychometric properties of four FACE-Q Aesthetics scales in patients planning and undergoing minimally invasive facial cosmetic procedures [0.03%]
四种FACE-Q美学量表在计划和接受微创面部美容手术患者中的心理测量属性
Eszter Mercédesz Müller,Anna Nikl,Máté Krebs et al.
Eszter Mercédesz Müller et al.
Objectives: This study aimed to assess aspects of validity of four FACE-Q Aesthetics scales in a sample of patients undergoing and planning facial minimally invasive cosmetic procedures (MICPs), such as botulinum toxin, l...