Eligibility definitions and response rate accuracy in studies using routinely collected PROMs: a systematic review [0.03%]
纳入使用常规收集的PROM数据的研究的入组定义和应答率准确性系统综述
Johanna Laine,Eila Kankaanpää
Johanna Laine
Purpose: Patient reported outcome measures (PROMs) are increasingly used to assess treatment outcomes and quality of care. This systematic review examined how eligible populations and response rates (RRs) were reported in...
Designing oncology-specific patient-reported outcome dashboards: end-user preferences for reference curve inclusion and visualization in pediatric cancer care [0.03%]
儿童癌症护理中针对肿瘤患者的特异性患者报告结果仪表盘的设计：利益相关者偏好纳入和可视化参考曲线的方法
R Alkirawan,S A Schepers,R R L van Litsenburg et al.
R Alkirawan et al.
Purpose: Patient Reported Outcome Measures PROMs are essential for monitoring health-related quality of life (HRQoL) in pediatric oncology. In the Netherlands, the KLIK PROM portal facilitates structured HRQoL communicati...
Concerns about "a direct comparison of the measurement properties of the PROMIS-16 and EQ-5D-5L in the U.S. general population" [0.03%]
关于"PROMIS-16和EQ-5D-5L在美国普通人群中的测量属性直接比较的担忧"
Chengbo Zeng,Ron D Hays,Maria O Edelen
Chengbo Zeng
In this commentary, we expressed concerns about the design and findings of a recent study that directly compared the measurement properties of PROMIS-16 and EQ-5D-5 L in the U.S. general population. ...
Factors associated with self-care engagement among oesophageal and gastric cancer survivors: a population-based cross-sectional study [0.03%]
一项基于人群的横断面研究：与食管癌和胃癌幸存者自我护理行为相关的因素
Kenneth Färnqvist,Sara Färnqvist,Asif Johar et al.
Kenneth Färnqvist et al.
Background: Survivors of oesophageal and gastric cancer frequently experience persistent symptoms and functional limitations that affect their health-related quality of life (HRQL). Although self-care is increasingly reco...
Associations influencing quality of life in caregivers of patients with amyotrophic lateral sclerosis: a stress-process model approach [0.03%]
渐冻症患者的照顾者中影响照护者生活质量的相关因素：应激过程模式的视角
Nafiye Turkmenel,Ersin Uskun
Nafiye Turkmenel
Background: Caring for patients with amyotrophic lateral sclerosis (ALS) involves demands that reduce caregivers' quality of life. Although caregiver burden and perceived social support was conceptualized as an independen...
Understanding determinants of patient-reported outcome measure non-response among transgender and gender diverse individuals: an intersectional multilevel analysis of sociodemographic and structural vulnerabilities [0.03%]
理解跨性别和性别多样个体患者报告结果测量未回应的决定因素：一种交叉多层分析社会人口和结构脆弱性的方法
Manraj N Kaur,Mahima Jain,Tanujit Dey et al.
Manraj N Kaur et al.
Purpose: Patient-reported outcome measures (PROMs) are increasingly integrated into routine clinical care and value-based accountability frameworks, yet systematic non-response may exclude structurally marginalized popula...
Proceedings of the advancing patient-centred outcomes down under conference, Sydney 2025 [0.03%]
2025年悉尼Underdown患者为中心成果大会论文集
Jessica Roydhouse,Rachel Campbell,Ingrid Cox et al.
Jessica Roydhouse et al.
Factors associated with response to patient-reported outcome measures: a systematic review of systematic and scoping reviews, and meta-analyses [0.03%]
患者报告结局量表反应影响因素的系统评价和荟萃分析的系统评价及范围性评价
Sebastiaan Tjènne Peters,Joene Rutten,Yara Eline van Kooij et al.
Sebastiaan Tjènne Peters et al.
Purpose: This study aimed to identify and synthesize factors associated with response to digitally collected patient-reported outcome measures (PROMs) among adult patients, to inform efforts to improve response rates. ...
Symptom burden in cancer survivorship: insights from a survivorship program's patient-reported outcomes database [0.03%]
美国一癌症生存项目数据库中观察到的癌症幸存者的症状负担
Gisele C Tlusty,Eunju Choi,Karen Alsbrook et al.
Gisele C Tlusty et al.
Purpose: This study aimed to examine the symptom burden reported by survivors treated in survivorship clinics by describing the severity of symptoms and symptom interference with life activities, comparing symptom severit...
Cough, dyspnea, or chest pain? an examination of the composite endpoint in metastatic non-small cell lung cancer clinical trials [0.03%]
咳嗽、呼吸困难或胸痛？转移性非小细胞肺癌临床试验中复合终点的有效性研究
Carla Mamolo,Tracy Holt,Amparo Yovanna Castro Sanchez
Carla Mamolo
Purpose: Many clinical trials of metastatic non-small cell lung cancer (mNSCLC) include a composite endpoint of cough, chest pain and dyspnea to assess patient-reported symptomatic deterioration using time-to-confirmed de...