Regulating Heritable Human Genome Editing: Drawing the Line between Legitimate and Controversial Use [0.03%]
人类遗传基因编辑的监管：合法用途与争议用途之辨
Noemi Conditi
Noemi Conditi
In general, to modify the human germline is prohibited. However, regulating the use of HHGE might be a more efficient method than the actual ban. Indeed, when genome editing is safe for introduction in clinical practices, it is frequently p...
Governing, Protecting, and Regulating the Future of Genome Editing: The Significance of ELSPI Perspectives [0.03%]
治理、保护和规范基因编辑的未来：ELSPI视角的意义
Santa Slokenberga,Timo Minssen,Ana Nordberg
Santa Slokenberga
Balancing Innovation, 'Ordre Public' and Morality in Human Germline Editing: A Call for More Nuanced Approaches in Patent Law [0.03%]
基因编辑伦理：专利法进退两难道德困境呼吁精细化法律应对政策研究
Duncan Matthews,Timo Minssen,Ana Nordberg
Duncan Matthews
This article analyses the role that 'ordre public' and morality exceptions can play in the granting of patents on inventions in the field of human germline editing and the consequences of this policy option. In order to provide the context ...
Michal Koščík,Eliška Vladíková
Michal Koščík
The article explores whether the broader regulatory framework applicable to the member states of the EU contains suitable tools to react to the rapid advances in science, especially as to the question of germline editing technologies. From ...
The European Court of Human Rights and the Emergence of Human Germline Genome Editing [0.03%]
欧洲人权法院与人类基因组编辑的兴起
Merel M Spaander
Merel M Spaander
The field of human germline genome editing (HGGE) offers a promising reproductive potential to prevent inheritance of genetic diseases, yet also opens the door to undesirable eugenics. This stirred the debate about the acceptability of HGGE...
European Court of Human Rights [0.03%]
欧洲人权法院
Joseph Dute,Tom Goffin
Joseph Dute
Assessment of the Dutch Rules on Health Data in the Light of the GDPR [0.03%]
荷兰健康数据规则符合通用数据保护条例(GDPR)的评估
Irith Kist
Irith Kist
In 2021, the European Commission published its Assessment of the EU Member States' rules on health data in the light of General Data Protection Regulation. The Commission concluded that the GDPR has been interpreted in many ways in the EU a...
Health Care Complaints and Professional Legal Responsibility - A Cross-Country Comparative Review [0.03%]
医疗投诉与职业法律责任——跨国比较研究
Søren Fryd Birkeland
Søren Fryd Birkeland
One approach to stimulating patient safety and health care quality is through holding health care professionals legally responsible for their performance. Law and health care variation across countries, however, makes it difficult to get an...
Jessica Maureen Krüger
Jessica Maureen Krüger
Assisted dying is subject to markedly different laws in different European countries, and the legislation is rapidly changing in many of them. This article seeks to enhance our understanding of how public and health-care professionals' opin...
Information Privacy in Healthcare - The Vital Role of Informed Consent [0.03%]
医疗保健中的信息隐私问题——知情同意的重要作用
Roy McClelland,Colin M Harper
Roy McClelland
The use and disclosure of patient information is subject to multiple legal and ethical obligations. Within European human rights law the differences relating to consent are reflected in the separate requirements of data protection law, the ...