Manoj Biniwale
Manoj Biniwale
Optimizing synchronized non-invasive support: Clinical management guidelines for non-invasive neurally adjusted ventilatory assist [0.03%]
非侵入性神经调整通气支持临床管理指南
Kimberly Firestone,Howard Stein
Kimberly Firestone
Neurally Adjusted Ventilatory Assist (NAVA) is an innovative ventilation mode that empowers patients to control both the timing and level of ventilatory support. By utilizing the electrical activity of the diaphragm (Edi) as the control sig...
Christy L Cummings
Christy L Cummings
Genetic and epigenetic contributors and mimickers of phenotypic hypoxic-ischemic encephalopathy (HIE) [0.03%]
遗传和表观遗传学因素和假象因素对缺氧缺血性脑病表型的影响
Ulrike Mietzsch,Janessa B Law,Basel Thayyil et al.
Ulrike Mietzsch et al.
Hypoxic-ischemic encephalopathy (HIE) remains one of the leading causes of neonatal morbidity and mortality despite advancement in care. Over 60 % of infants presenting with phenotypic HIE lack a clear identifiable acute sentinel event. Cli...
Parental mental health & well-being in the NICU: Addressing the surgeon general's advisory [0.03%]
新生儿重症监护病房中家长的心理健康和福祉：应对卫生局局长的建议
Kara Hansen,Tiffany Gladdis,Stephanie Kukora
Kara Hansen
The 2023 U.S. Surgeon General's Advisory on the Mental Health and Well-Being of Parents highlights the critical role parents play in family and societal health and underscores the urgent need to address the growing mental health challenges ...
Looking beyond diagnoses to functioning: using the F words and personalizing care in neonatology [0.03%]
着眼于功能，而不仅仅是诊断：在新生儿科使用“F”词汇和个性化护理
Emilie Thivierge,Thuy Mai Luu,Peter Rosenbaum et al.
Emilie Thivierge et al.
Extreme prematurity is associated with significant risk of mortality and morbidities. Neonatal follow-up assesses health outcomes of babies as they grow older to improve care and contribute to research and quality improvement initiatives. R...
An end to genetic exceptionalism: reframing the ethics of genomic sequencing for rapid neonatal diagnosis [0.03%]
遗传特殊性终结：新生儿快速诊断基因组测序的伦理问题再思考
Kaiulani S Shulman,Kristen Fishler Malone,Hadley Stevens Smith et al.
Kaiulani S Shulman et al.
Exome or genome sequencing (ES/GS) is increasingly used as the first-line test for postnatal diagnosis of rare genetic conditions, especially in intensive care units (ICUs). Early concerns regarding the use of broad genetic testing centered...
Ethical challenges and justice concerns for infants and children with life-limiting conditions and significant disability, including trisomy 13 and 18 [0.03%]
涉及唐氏综合症患儿等生命终末期儿童的伦理挑战和公平问题
Alaina K Pyle,Mark R Mercurio
Alaina K Pyle
Some life-limiting conditions associated with significant neurodevelopmental impairment, such as trisomy 13/18, have historically been considered lethal, thus medical or surgical treatments would be inappropriate. Evolving literature has sh...
Climate change and environmental degradation: bioethical considerations and impact for neonatal care [0.03%]
气候变化与环境破坏对新生儿护理的生物伦理影响及考虑因素
McKenna F Parnes,Luke Mosley,Heather H Burris et al.
McKenna F Parnes et al.
Climate change has severe consequences for neonatal health. Neonates are uniquely vulnerable to the impacts of climate change due to their developing bodies and immature immune and thermoregulatory systems. Climate change increases the risk...
Anne Sullivan,Jennifer Arnold,Sheria Wilson et al.
Anne Sullivan et al.
Ableism plays a pervasive yet often unexamined role in decision-making at extreme prematurity. This review examines how ableist assumptions about quality of life, normalcy, and parental burden can shape clinical counseling and influence dec...