Invisible Wounds: Navigating Palliative Care for Survivors of Human Trafficking Diagnosed with Serious Illness [0.03%]
Molly Svendsen,Reagan Summers
Molly Svendsen
Survivors of human trafficking experience profound trauma with long-lasting psychological, physical, and social consequences that can complicate medical care, particularly in the context of serious illness. This case highlights the palliati...
Feasibility, Acceptability, and Impact of Using Virtual Reality Social Support for Adolescents Living with Serious Illness [0.03%]
Shaindy Alexander,Julia St Louis,Adam Rapoport et al.
Shaindy Alexander et al.
Background:Adolescents living with serious illness have unique developmental and psychosocial needs that require special consideration and care. This population faces an increased risk of isolation, depression, and anxiety. Virtual reality ...
The Qualitative Impact of Incorporating Photo-Narratives into the Care of Children with Severe Neurological Impairment: Parent and Clinician Perspectives [0.03%]
Ellie Oslin,Nell E Baumgarten,Elizabeth Julian et al.
Ellie Oslin et al.
Background: Children with severe neurological impairment (SNI) and their families face many challenges in the hospital setting, where there is limited time to understand the child's full quality of life. Photo-narratives ...
Losing the Story Thread: How Ambient AI Tools Risk Erasing the Narrative of Serious Illness Care and Implications for Communication and Decision-Making in Serious Illness Care [0.03%]
Laura P Gelfman,Britni Lookabaugh,Michael Huber et al.
Laura P Gelfman et al.
Ultrasound-Derived Muscle Biomarkers as a Gateway toward Quantitative Pediatric Frailty in Palliative Care [0.03%]
José Fernández-Cuesta Peñafiel,Alvaro Navarro Mingorence,Veronica Puertas Mrtín et al.
José Fernández-Cuesta Peñafiel et al.
Background: Adult frailty scales rely on performance tests that are rarely feasible in children. Quantitative muscle ultrasound (US) could provide an objective bridge, but its pediatric utility is untested. ...
Top Ten Tips Palliative Care Clinicians Should Know About Caring for People with Postintensive Care Syndrome [0.03%]
Alice Bottussi,Jacopo DAndria Ursoleo,Donald R Sullivan et al.
Alice Bottussi et al.
Intensive care unit (ICU) mortality rates have substantially declined over the past few decades. Accordingly, there has been an increase in the number of ICU survivors, who are often burdened by long-term sequelae and high morbidity followi...
Key Changes in Palliative Care Delivery and Patient and Family Experiences in the 5 Years since the COVID-19 Pandemic Onset: A Systematic Review [0.03%]
Tristen Peyser,Nicole M Pyke,Michael Hoerger
Tristen Peyser
Background: Palliative care improves quality of life for patients and families. More research is needed to understand how care delivery and patient and family experiences have changed in the 5 years since the COVID-19 pan...
Letter: Whole Peritoneal Radiotherapy for Malignant Ascites: A Novel Hypothesis and Call for Research [0.03%]
Mirosław Kiedrowski,Katarzyna Ziemba,Paweł Nurzyński
Mirosław Kiedrowski
Overwhelming Uncertainty: Acceptance and Commitment Therapy Informed Communication for Serious Illness Care [0.03%]
Brianna Williamson,Greg Merrill,Theodore Slomoff et al.
Brianna Williamson et al.
Acceptance and commitment therapy (ACT) is a psychotherapeutic model that focuses on developing psychological flexibility by encouraging patients to attune to their present moment experience, cultivate openness to those experiences, and res...