Health-Related Quality of Life Outcomes of a Telehealth Care Coordination Intervention for Children With Medical Complexity: A Randomized Controlled Trial [0.03%]
面向复杂疾病患儿的远程医疗协调干预的健康相关生活质量结果：一项随机对照试验
Wendy S Looman,Robyn L Hullsiek,Lyndsay Pryor et al.
Wendy S Looman et al.
The purpose of this study was to explore health-related quality of life (HRQL) and family impact in the context of an advanced practice registered nurse-delivered telehealth care coordination intervention for children with medical complexit...
Incontinentia Pigmenti: A Summary Review of This Rare Ectodermal Dysplasia With Neurologic Manifestations, Including Treatment Protocols [0.03%]
色素失禁症综述：一种罕见的外胚层发育不良疾病及其神经系统表现和治疗方案概述
Carol Greene-Roethke
Carol Greene-Roethke
Incontinentia pigmenti is a rare neuroectodermal dysplasia caused by a defect in the IKBKG gene (formerly known as NEMO). There are 27.6 new cases per year worldwide; 65% to 75% are sporadic mutations, and 25% to 35% are familial. It is usu...
Exploration of Parent-Provider Communication During Clinic Visits for Children With Chronic Conditions [0.03%]
慢性病儿童门诊就诊期间的医患沟通研究
Barbara K Giambra,Stephen M Haas,Maria T Britto et al.
Barbara K Giambra et al.
Introduction: The purpose of this study was to explore the communication behaviors demonstrated by parents of children with chronic conditions and provider team members when communicating about the child's care in outpati...
Child Maltreatment Screening and Anticipatory Guidance: A Description of Pediatric Nurse Practitioner Practice Behaviors [0.03%]
儿童虐待筛查和预见性指导：儿科护士行为的描述性研究
Gail Hornor,Deborah Bretl,Evelyn Chapman et al.
Gail Hornor et al.
Introduction: Given the number of children affected by child maltreatment and the dire consequences that can develop, prompt identification of child maltreatment is crucial. The purpose of this study was to describe pedia...
Fetal Alcohol Spectrum Disorders: What Pediatric Providers Need to Know [0.03%]
孕期饮酒和胎儿酒精谱系障碍：儿科医生需要知道什么？
Angela Nash,Leah Davies
Angela Nash
Prenatal alcohol exposure is the cause of fetal alcohol spectrum disorders (FASDs), the prevalence of which is similar to that of other developmental disabilities like Down syndrome and autism. Children, adolescents, and adults who live wit...
Martha K Swartz
Martha K Swartz
Using a Parent Coordinator to Support the Role of the Pediatric Nurse Practitioner in Care Coordination [0.03%]
使用家长协调员支持儿科护士执业者在护理协调中的作用
Anna-Liisa Bentti Vockell,Janet Wimberg,Maria Britto et al.
Anna-Liisa Bentti Vockell et al.
The role of the pediatric nurse practitioner is becoming more complex with time. Both patients and the health care system are becoming more intricate. Effective support of the PNP can consist of a nonclinical professional who is a parent of...
Increasing Parental Knowledge Related to the Human Papillomavirus (HPV) Vaccine [0.03%]
与人乳头瘤病毒(HPV)疫苗相关的家长知识增多
Joseph J Cipriano,Robert Scoloveno,Angela Kelly
Joseph J Cipriano
Introduction: The purposes of this study were to evaluate parental attitudes toward general vaccination protocols and increase parental knowledge of the human papilloma virus (HPV) vaccine. ...
The Financial Impact of a Hospital-Based Care Coordination Program for Children With Special Health Care Needs [0.03%]
医院儿童特别保健需求的护理协调计划的财务影响
Janine M Petitgout
Janine M Petitgout
Care coordination programs are important in caring for medically complex pediatric patients, particularly for children with special health care needs. This study is a retrospective financial analysis of a hospital-based care coordination pr...
Rosemary Johnston,Beth A DelConte,Libby Ungvary et al.
Rosemary Johnston et al.
Introduction: Many families enroll their infants and toddlers in early education and child care programs. The Pennsylvania Chapter of the American Academy of Pediatrics recruited 32 child care centers that care for infant...