'Do I actually even need all these tablets?' A qualitative study exploring deprescribing decision-making for people in receipt of palliative care and their family members [0.03%]
《我实际需要所有这些药片吗?》一项关于探索为接受姑息治疗的人及其家庭成员减少药物使用的决定的定性研究
Anna Robinson-Barella,Charlotte Lucy Richardson,Zana Bayley et al.
Anna Robinson-Barella et al.
Background: For people in receipt of palliative care, where polypharmacy is common and medication burden is high, there remains limited knowledge around the decision-making processes that underpin deprescribing; for examp...
Safety of subcutaneous plastic cannulas in patients with severe thrombocytopenia: Findings from a retrospective analysis [0.03%]
严重血小板减少症患者使用皮下塑料导管的安全性:一项回顾性分析的结果
Till Arnold,Claudia Bausewein
Till Arnold
Background: Continuous subcutaneous infusion is a common and well-established method for administering medications in palliative care. However, limited evidence exists regarding the safety of subcutaneous plastic cannulas...
Interventions to address supportive care needs of people with pulmonary fibrosis and/or their caregivers: A scoping review [0.03%]
针对肺纤维化患者及其照顾者支持性护理需求的干预措施:范围综述
Naa-Dromoh Quarshie,Matthew Wells,Giles Dixon et al.
Naa-Dromoh Quarshie et al.
Background: Pulmonary fibrosis is often accompanied by high levels of unmet supportive care needs that impact psycho-social well-being and overall quality of life for both the person with pulmonary fibrosis and their fami...
A mixed methods exploration of the health and caregiving experiences of fathers of children with a life-limiting condition [0.03%]
患有绝症儿童的父亲的健康和护理经历的混合研究方法探索
Victoria Fisher,Karl Atkin,Lorna K Fraser
Victoria Fisher
Background: Fathers of children with a life-limiting condition are underrepresented in the literature. We know little about their experiences of caregiving, the impact of this on their health and their support needs. ...
Providing life-sustaining treatments at home for those with Motor Neurone Disease: A qualitative study of bereaved family members' experiences of responsibility [0.03%]
为患有运动神经元疾病的人提供家庭生命维持治疗:一项关于悲伤的家庭成员责任体验的质性研究
Eleanor Wilson,Jonathan Palmer,Georgios Kaltsakas et al.
Eleanor Wilson et al.
Background: Motor neurone disease is an incurable neurodegenerative condition that progressively impairs motor function. It affects mobility, speech, swallowing and breathing, leading to significant dependence on others. ...
Systematic adaptation of public health palliative care interventions across settings using ADAPT guidance: Methodological learnings from the EU NAVIGATE project [0.03%]
利用ADAPT指南在不同环境下系统性适应公共健康姑息治疗干预措施:来自欧盟NAVIGATE项目的循证方法学习
Fien Van Campe,Kenneth Chambaere,Lara Pivodic et al.
Fien Van Campe et al.
Background: Systematic adaptation of evidence-informed interventions is critical for effective transfer across settings. Public health palliative care interventions pose unique challenges because of their complexity and e...
Advance care planning and quality of life: A qualitative interview study in people with young-onset dementia and their family caregivers [0.03%]
提前护理规划和生活质量:年轻发病型痴呆患者及其家庭护理人员的质性访谈研究
Jasper Maters,Marieke Perry,Ton de Wit et al.
Jasper Maters et al.
Background: The importance of palliative care and advance care planning in dementia is increasingly recognized. However, little is known about the distinct needs and preferences of people with young-onset dementia. ...
Off-label drug use in palliative medicine: Delphi study for the consensus of evidence-based treatment recommendations [0.03%]
姑息医学中超适应症用药:形成基于证据的治疗建议共识的德尔菲研究
Stefanie Pügge,Aleksandra Dukic-Ott,Julian Baumgärtel et al.
Stefanie Pügge et al.
Background: Off-label use of drugs is an integral part of everyday clinical practice in palliative medicine. However, it is associated with many uncertainties, that is, drug therapy safety or legal issues including cost c...
'Constipation': One word, many meanings amongst persons with cancer: An observational study [0.03%]
《便秘》:一个词在癌症患者中具有多种含义:一项观察研究
Andrew Davies,Norah Fagan,Jenny Power et al.
Andrew Davies et al.
Background: Constipation is common in people with advanced cancer and is associated with significant morbidity and health economic burden, but it is often sub-optimally managed. Despite international consensus diagnostic ...
'I couldn't live without hope': A qualitative study using reflexive thematic analysis on approaches to hope and prognostic awareness among people with advanced disease [0.03%]
“我不能没有希望生活”:关于晚期疾病患者对希望和预后意识的方法的反思性主题分析的质性研究
Miroslava Janoušková,Adam Houska,Sára Víchová et al.
Miroslava Janoušková et al.
Background: Hope plays a pivotal role in enhancing the quality of life and coping strategies of individuals living with advanced diseases. The nature of the relationship between hope and prognostic awareness is unclear. ...