Anne Kerr
Anne Kerr
The governance of genetics involves a wide range of policy networks and covers a considerable array of genetic technoscience. Despite this apparent diversity, the uniformity of some genetic governance requires investigation. Reviewing polic...
The Australian joint inquiry into the Protection of Human Genetic Information [0.03%]
澳大利亚关于人类遗传信息保护的联合调查研究
David Weisbrot
David Weisbrot
The Australian Law Reform Commission (ALRC) and the Australian Health Ethics Committee are currently engaged in an inquiry into the Protection of Human Genetic Information. In particular, the Attorney-General and the Minister for Health and...
Kerstin Wustner
Kerstin Wustner
The aim of this paper is to work out the relationship between ethics and practice with reference to genetic counselling. First, the most important principles with respect to genetic counselling and to counsellor-client-interaction, are expl...
Anatomy of a media event: how arguments clashed in the 2001 human cloning debate [0.03%]
媒体事件的解剖学：2001年人类克隆之争中的争论分析
Brigitte Nerlich,David D Clarke
Brigitte Nerlich
This paper studies the distinctive role that staged media events play in the public understanding of genetics: they can focus the attention of the media, scientists and the public on the risks and benefits of genetic advances, in our case, ...
The governance of human genetics: policy discourse and constructions of public trust [0.03%]
人类基因组治理：政策论说与公众信任的构建
Mavis Jones,Brian Salter
Mavis Jones
The collection of practices now commonly understood as 'biotechnology' poses a challenge to traditional mechanisms of regulating science and technology, just as it challenges traditional practices of science. The task of regulation is to re...
Biological weapons, genetics, and social analysis: emerging responses, emerging issues--II [0.03%]
生物武器，基因技术与社会分析：新对策，新问题（二）
Brian Rappert
Brian Rappert
Recent terrorist attacks in the United States have generated significant attention in many countries to the threats posed by biological weapons. In response to these events and the specter of future attacks, bioscientists and professional o...
Actor-network theory: a tool to support ethical analysis of commercial genetic testing [0.03%]
行动者网络理论：支持商业基因检测伦理分析的工具
Bryn Williams-Jones,Janice E Graham
Bryn Williams-Jones
Social, ethical and policy analysis of the issues arising from gene patenting and commercial genetic testing is enhanced by the application of science and technology studies, and Actor-Network Theory (ANT) in particular. We suggest the pote...
Lotte Huniche
Lotte Huniche
This article is concerned with understanding what is at stake in the everyday lives of family members facing Huntington's Disease (HD). The methodological and analytical point of departure is German critical psychology, particularly the cat...
David B Resnik
David B Resnik
For several decades, clinical geneticists have espoused two key ethical principles, nondirectiveness and confidentiality. These principles made a great deal of sense in the highly personal and controversial setting of reproductive genetics....
'Science is really needed--that's all I know': informed consent and the non-verbal practices of collecting blood for genetic research in northern Sweden [0.03%]
“确实需要科学——仅此而已”——瑞典北部关于收集血液进行遗传研究的知情同意与非语言实践
Klaus Hoeyer
Klaus Hoeyer
In Vasterbotten County in northern Sweden a start-up biotech company has recently gained all commercial rights to one of the worlds largest population based research biobanks. The biobank and the company have publicly emphasized that all do...