Garrath Williams,Doris Schroeder
Garrath Williams
This article considers how we should frame the ethical issues raised by current proposals for large-scale genebanks with on-going links to medical and lifestyle data, such as the Wellcome Trust and Medical Research Council's 'UK Biobank'. A...
Tarja Nyrhinen,Helena Leino-Kilpi,Marja Hietala
Tarja Nyrhinen
The diagnostic genetic testing process has certain unique ethical features and deserves special consideration. The purpose of this study was to determine through empirical research, using focussed interview, what ethical issues are involved...
Perfecting people: selective breeding at the Oneida Community (1869-1879) and the eugenics movement [0.03%]
优生思想下的育种实践：一神教社团的“选民”培育计划(1869—1879)
Martin Richards
Martin Richards
The paper describes the selective breeding experiment which took place in the Bible Communist Oneida Community in New York State. The Community was founded in 1848 by John Humphrey Noyes and grew to some three hundred members. It disbanded ...
Field of genes: the politics of science and identity in the Estonian Genome Project [0.03%]
基因的领域：爱沙尼亚基因组计划中的科学与身份政治学
Amy L Fletcher
Amy L Fletcher
This case study of the Estonian Genome Project (EGP) analyses the Estonian policy decision to construct a national human gene bank. Drawing upon qualitative data from newspaper articles and public policy documents, it focuses on how propone...
Investigating genetic discrimination in Australia: opportunities and challenges in the early stages [0.03%]
澳大利亚的遗传歧视调查：早期阶段的机会与挑战
Sandra D Taylor,Margaret F Otlowski,Kristine K Barlow-Stewart et al.
Sandra D Taylor et al.
Genetic discrimination, defined as the differential treatment of individuals or their relatives on the basis of actual or presumed genetic differences, is an emerging issue of interest in academic, clinical, social and legal contexts. While...
'Wonderment and dread': representations of DNA in ethical disputes about forensic DNA databases [0.03%]
“好奇与恐惧”：伦理争议中关于DNA的表征
Robin Williams,Paul Johnson
Robin Williams
The national DNA Database of England & Wales is the largest forensic DNA database in the world. Since 1995 it has quickly developed to hold the genetic profiles of over two million people. This collection of tissue samples, taken without co...
Genes and geneticization? The social construction of autosomal dominant polycystic kidney disease [0.03%]
基因还是遗传？论常染色体显形多囊肾疾病的社會建构
Susan M Cox,Rosalie C Starzomski
Susan M Cox
Critics of the new genetics argue that contemporary understandings of health and illness are becoming increasingly 'geneticized.' Salient implications of this critique are explored here within the context of Autosomal Dominant Polycystic Ki...
S Sigurdsson
S Sigurdsson
Iceland has attracted world-wide attention because of a controversy surrounding the Icelandic Health Sector Database Act of 1998 and the genomics company deCODE Genetics. The controversy concerns limits to state power, bioethics and regulat...
Biological weapons, genetics and social analysis: emerging responses, emerging issues--I [0.03%]
生物武器、基因与社会分析：新兴对策与议题——上篇
Brian Rappert
Brian Rappert
Recent terrorist attacks in the USA have generated significant attention in many countries to the threats posed by biological weapons. In response to these events and the spectre of future attacks, bioscientists and professional organizatio...
The politics of cloning: mapping the rhetorical convergence of embyros and stem cells in parliamentary debates [0.03%]
克隆的政治：“胚胎”和“干细胞”在议会辩论中的修辞汇合地图
Sarah Parry
Sarah Parry
In April 2001, the 1990 Human Fertilisation and Embryology Act (HFE Act) was amended to allow stem cell research to use human embryos. By identifying what Mulkay calls "discursive regularities" [Mulkay, M. (1993) Rhetorics of hope and fear ...