Managing Expectational Language: Translational genetic professionals consider the clinical potential of next-generation sequencing technologies [0.03%]
期望中的语言管理——转化型遗传专业人员考虑下一代测序技术的临床潜力
Pei P Koay,Richard R Sharp
Pei P Koay
Autobiologies on YouTube: Narratives of Direct-to-Consumer Genetic Testing [0.03%]
YouTube自传体节目：直接面向消费者的基因检测叙事分析
Anna Harris,Susan E Kelly,Sally Wyatt
Anna Harris
Despite a growing personal genomics market, little is known about how people engage with the possibilities offered by direct-to-consumer (DTC) genetic testing. In order to help address this gap, this study deploys narrative analysis of YouT...
Martyn Pickersgill,Jörg Niewöhner,Ruth Müller et al.
Martyn Pickersgill et al.
Epigenetics is the study of changes in gene expression caused by mechanisms other than changes in the DNA itself. The field is rapidly growing and being widely promoted, attracting attention in diverse arenas. These include those of the soc...
Scientific institutions and effective governance: a case study of Chinese stem cell research [0.03%]
机构设置与有效治理——以中国干细胞研究为例
Joy Yueyue Zhang
Joy Yueyue Zhang
In terms of stem cell research, China appears both as a "powerhouse" armed with state-of-the-art facilities, internationally trained personnel and permissive regulation and as a "bit player," with its capability for conducting high quality ...
On being a (modern) scientist: risks of public engagement in the UK interspecies embryo debate [0.03%]
浅谈现代科研人员：以英国多物种胚胎争论为例探讨公共参与的风险性问题
James Porter,Clare Williams,Steven Wainwright et al.
James Porter et al.
In 2006, a small group of UK academic scientists made headlines when they proposed the creation of interspecies embryos - mixing human and animal genetic material. A public campaign was fought to mobilize support for the research. Drawing o...
"So, what is an embryo?" A comparative study of the views of those asked to donate embryos for hESC research in the UK and Switzerland [0.03%]
胚胎是什么呢？从英国和瑞士要求捐出胚胎进行人类胚胎干细胞研究的个人角度出发所作的比较研究
Erica Haimes,Rouven Porz,Jackie Scully et al.
Erica Haimes et al.
The moral status of the human embryo has gained much attention in debates over the acceptability, or otherwise, of human embryonic stem cell research. Far less attention has been paid to the suppliers of those embryos: people who have under...
Informed Choice in Direct-to-Consumer Genetic Testing for Alzheimer and Other Diseases: Lessons from Two Cases [0.03%]
针对阿尔茨海默病和其他疾病的直接面向消费者的基因检测的知情选择：两例研究的启示
Donna A Messner
Donna A Messner
Health-related direct-to-consumer (DTC) genetic testing has been a controversial practice. Especially problematic is predictive testing for Alzheimer disease (AD), since the disease is incurable, prevention is inconclusive, and testing does...
Personal genomics and individual identities: motivations and moral imperatives of early users [0.03%]
个人基因组学与个体身份：早期使用者的动力及道德诉求
Michelle L McGowan,Jennifer R Fishman,Marcie A Lambrix
Michelle L McGowan
Since 2007, consumer genomics companies have marketed personal genome scanning services to assess users' genetic predispositions to a variety of complex diseases and traits. This study investigates early users' reasons for utilizing persona...
Ian Forbes
Ian Forbes
The biotechnological revolution presents states and governments with a set of challenges that they have difficulty meeting. Part of the problem is associated with common perceptions of the speed, volume and the radical uncertainty of the ne...
Anne Scott
Anne Scott
Disquiet relating to the potential for knowing one's 'fate' emerged strongly in sixteen focus groups relating to genetic testing held in Aotearoa/New Zealand. This paper draws on the concept of 'life itself', rephrased here as 'capitalised ...