Deborah Bertorello,Giampaolo Brichetto,Frans Folkvord et al.
Deborah Bertorello et al.
Background: Patient engagement is increasingly considered to be an important element in the treatment of brain disorders to optimise outcomes for patients, society, and healthcare systems. Nonetheless, scientific research...
Clinician and Patient Reporting of Symptomatic Adverse Events in Cancer Clinical Trials: Using CTCAE and PRO-CTCAE® to Provide Two Distinct and Complementary Perspectives [0.03%]
在癌症临床试验中对症状不良事件的临床医生和患者报告：使用CTCAE和PRO-CTCAE提供两个独立且互补的观点
Lori M Minasian,Ann O&#x;Mara,Sandra A Mitchell
Lori M Minasian
Inclusion of the patient perspective in the reporting of symptomatic adverse events provides different and complementary information to clinician reporting using the Common Terminology Criteria for Adverse Events (CTCAE). The National Cance...
The Use of Patient Engagement to Gather Perceptions on the Cost of Infant Feeding [0.03%]
使用患者参与来收集有关婴儿喂养成本的看法
Alicia Blackmore,Holly Etchegary,Leigh Anne Allwood-Newhook et al.
Alicia Blackmore et al.
Purpose: Patient-oriented research (POR) and patient engagement (PE) has highlighted the value of incorporating patients' ideas and priorities in health research. Using the guiding principles of POR and PE, the current st...
Prostate Cancer Screening Practice and Associated Factors Among Men in Public Health Facilities of Hossana Town, Ethiopia [0.03%]
埃塞俄比亚霍萨纳镇公共卫生设施中男性前列腺癌筛查实践及其相关因素
Ayano Shanko,Lonsako Abute,Temesgen Tamirat
Ayano Shanko
Background: Prostate cancer is a disease of the prostate gland. It is a recognized tumour in men and is common worldwide. It is the second most frequent cancer and the fifth leading cause of death in males worldwide. Worl...
Assessing the Validity of the Long-Term Conditions Questionnaire (LTCQ) in Women During Pregnancy and the First Year Following Birth [0.03%]
评估长期条件问卷（LTCQ）在女性孕期及产后第一年的有效性
Laura Kelly,Ray Fitzpatrick,Jennifer J Kurinczuk et al.
Laura Kelly et al.
Background: The aim of this study was to validate a generic patient-reported outcome measure, the Long-Term Conditions Questionnaire (LTCQ), among pregnant and postpartum women living with a pre-existing long-term conditi...
The Validity of Clinical Scoring in the Diagnosis of Stroke Subtype: Validation Study [0.03%]
临床评分在卒中分型诊断中的有效性：验证性研究
Biruk Endalkachew Mekonnen,Molla Asnake Kebede
Biruk Endalkachew Mekonnen
Background: The gold standard for distinguishing stroke subtype is non-contrast CT. However, it's still prohibitively expensive and out of reach for the majority of recourse-constrained settings. Clinically, not all patie...
Development of the Breast Cancer Survivors Symptom Checklist for Use in Follow-Up Multidisciplinary Appointments [0.03%]
乳腺癌幸存者症状检查表在随访多学科诊疗中的应用开发
Inger Schou-Bredal,Elin Myklebust Sørensen,Kari Heitmann Kraglund et al.
Inger Schou-Bredal et al.
Background: Breast cancer survivors are primarily followed up to monitor the effectiveness of treatment and complications and to detect recurrences. Many breast cancer survivors may experience prolonged adverse physical a...
A Patient Reported Outcome Ontology: Conceptual Issues and Challenges Addressed by the Patient-Reported Outcomes Measurement Information System® (PROMIS®) [0.03%]
患者报告结果的本体论：通过患者报告结果测量信息系统的概念问题和挑战
David Cella,Ron D Hays
David Cella
We briefly review the history of measuring perceptions of health and quality of life, followed by an examination of conceptual issues related to terminology that have led to potentially conflicting ontologies. Then, we discuss challenges po...
Characteristics of Exceptionally Good Doctors: A Protocol for a Cross-Sectional Survey of Adults [0.03%]
优秀医生的特点：一项针对成年人的横断面调查方案_protocol
Christoph Schnelle,Mark A Jones
Christoph Schnelle
Background: Doctors constitute a significant proportion of a very large number of medical interactions. They are known to vary in the quality of their work, with some having an exceptionally beneficial effect on patients'...
Psychometric Validation of the Haemo-QOL-A in Participants with Hemophilia A Treated with Gene Therapy [0.03%]
血友病A患者基因治疗的Haemo-QOL-A心理测量学验证研究
Jennifer Quinn,Kathleen A Delaney,Wing Yen Wong et al.
Jennifer Quinn et al.
Purpose: The hemophilia-specific health-related quality of life (HRQOL) questionnaire (Haemo-QOL-A) is validated for detecting QOL changes following standard therapy for hemophilia A, but has not been rigorously evaluated...