Psychometric Analysis of the Patient-Reported Hypoparathyroidism Symptom Diary Symptom Subscale Using Data from Two Clinical Trials [0.03%]
基于两项临床试验数据的低甲状旁腺素血症症状日记量表患者报告结果测量工具的症状亚量表的心理测量学分析
Lauren Nelson,Steven W Ing,Mishaela R Rubin et al.
Lauren Nelson et al.
Purpose: The hypoparathyroidism symptom diary (HypoPT-SD) is a disease-specific patient-reported outcome (PRO) tool comprising a 7-item symptom subscale, a 4-item impact subscale and 1-item anxiety, and sadness or depress...
Quantitative and Qualitative Exploration of Meaningful Change on the Vineland Adaptive Behavior Scales (Vineland™-II) in Children and Adolescents with Autism Without Intellectual Disability Following Participation in a Clinical Trial [0.03%]
自闭症儿童参与临床试验后威尼尔德适应行为量表（第二版）测评结果显著变化的量化及定性研究
Susanne Clinch,Stacie Hudgens,Elizabeth Gibbons et al.
Susanne Clinch et al.
Purpose: The VinelandTM Adaptive Behavior Scale is often used in autism spectrum disorder (ASD) trials. The Adaptive Behavior Composite Score (VABS-ABC) is the standardized overall score (the average of the Socialization,...
Qualitative Exploration in Exit Interviews of Changes Observed in Clinical Trials for Individuals with Autism Spectrum Disorder Without Intellectual Disability [0.03%]
自闭症谱系障碍且无智力障碍患者临床试验退出访谈中的定性探索研究
Michael Chladek,Claire Burbridge,Elizabeth Gibbons et al.
Michael Chladek et al.
Purpose: To explore, from the perspective of Study Partners (SPs; eg, caregivers) of clinical trial participants with autism spectrum disorder (ASD), any changes experienced in socialization and communication over the cli...
Impact of Ravulizumab on Patient Outcomes and Quality of Life in Generalized Myasthenia Gravis [0.03%]
Ravulizumab对常规型重症肌无力患者结局和生活质量的影响
Carlo Antozzi,Renato Mantegazza
Carlo Antozzi
Myasthenia gravis (MG) is an autoimmune ion channel disorder in which antibodies to different end-plate antigens impair neuromuscular transmission, ultimately leading to muscle weakness and fatigability. In about 85% of patients with MG, au...
Christian Espinoza-Vinces,Rafael Villino-Rodríguez,Ainhoa Atorrasagasti-Villar et al.
Christian Espinoza-Vinces et al.
Introduction: Parkinson's disease (PD) is a chronic and progressive neurodegenerative condition due to the degeneration of nigral dopaminergic cells. Both motor and non-motor symptoms (NMS) of PD produce a marked impairme...
Generating Items for Measuring Needs-Based Quality of Life and Self-Perceived Health Inequity in Patients with Multimorbidity: Development of the MultiMorbidity Questionnaire (MMQ) [0.03%]
多病共存生活质量及自我感知健康不平等测量项目的生成：多病共存问卷（MMQ）的编制
Kristine Henderson Bissenbakker,Anne Møller,Alexandra Brandt Ryborg Jønsson et al.
Kristine Henderson Bissenbakker et al.
Purpose: To describe the processes of developing domains and items for the MultiMorbidity Questionnaire (MMQ), a multimorbidity-specific PROM for the assessment of Needs-based QoL. ...
Association Between Hematologic Response and Change in Health-Related Quality of Life Among Patients with Light-Chain (AL) Amyloidosis [0.03%]
轻链(AL)型淀粉样变性患者血液学应答与健康相关生命质量变化的关系分析
Avery A Rizio,Kristen L McCausland,Michelle K Carty et al.
Avery A Rizio et al.
Purpose: The purpose of this secondary data analysis was to examine the association between hematologic response and health-related quality of life (HRQoL) among patients with light-chain (AL) amyloidosis. ...
Erratum: Development and Validation of a Revised Instrument to Measure Burden of Long-Term Medicines Use: The Living with Medicines Questionnaire Version 3 [Corrigendum] [0.03%]
长期用药负担的测量工具的再验证及改进：Living with Medicine问卷第3版
[This corrects the article DOI: 10.2147/PROM.S151143.]. © 2023 Katusiime et al.
Published Erratum
Patient related outcome measures. 2023 Oct 10:14:283-284. DOI:10.2147/PROM.S436333 2023
Disutilities Associated with Intravenous Iron Infusions: Results from a Time Trade-off Survey and Diminishing Marginal Utility Model for Treatment Attributes in China [0.03%]
中国静脉注射铁剂的负面效用：基于时间交易调查和治疗属性边际效用递减模型的结果分析
Shanlian Hu,Depei Wu,Jing Wu et al.
Shanlian Hu et al.
Purpose: Treatment process attributes can affect health state utilities associated with therapy. For intravenous iron, used to treat iron deficiency and iron deficiency anemia, research into process attributes is still la...
The Effect of Armed Conflict on Treatment Interruption, Its Outcome and Associated Factors Among Chronic Disease Patients in North East, Amhara, Ethiopia, 2022 [0.03%]
2022年埃塞俄比亚阿姆哈拉东北地区武装冲突对慢性病患者治疗中断及其结局和相关因素的影响
Betelhem Mesfin,Alexander Mersha Demise,Mullu Shiferaw et al.
Betelhem Mesfin et al.
Background: The health services delivery system is debilitated in conflict setting areas due to damage of health facilities and attack on health care providers. Armed conflict is a complex phenomenon which causes a large ...