Exploring Effective Communication Strategies Employed by Physicians in Delivering Bad News in Ethiopian State Hospitals [0.03%]
探索埃塞俄比亚州立医院医生传递坏消息时运用的有效沟通策略
Alebel Guangul Gessesse,Jemal Mohammed Haile,Amanuel Gebru Woldearegay
Alebel Guangul Gessesse
Introduction: Delivering Bad News (DBN) presents a highly challenging situation in physician-patient communication. This study aims to gain insight into the various communication strategies employed by physicians when DBN...
Lived Experiences of Patients on Hemodialysis Treatment at Kiruddu National Referral Hospital: A Phenomenological Study [0.03%]
基鲁杜国家转诊医院血液透析患者的生活体验：一项现象学研究
Alobo Jennifer Ogwang,Eric Baluku Murungi,Niyonzima Vallence et al.
Alobo Jennifer Ogwang et al.
Background: There is increasing number of patients undergoing hemodialysis globally. Patients on hemodialysis experience physical and emotional stress due to the changes brought by chronic kidney disease. ...
The Pattern of Admission, Clinical Characteristics, and Outcomes Among Patients Admitted to the Intensive Care Unit of a Tertiary Hospital in Tanzania: A 5-Year Retrospective Review [0.03%]
坦桑尼亚一家三级医院重症监护病房收治患者的入院、临床特点及结局的5年回顾性研究
Nadeem Kassam,Philip B Adebayo,Iris Martin Matei et al.
Nadeem Kassam et al.
Introduction: Despite the implementation of complex interventions, ICU mortality remains high and more so in developing countries. The demand for critical care in Sub-Saharan Africa is more than ever before as the region ...
The Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children's Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises [0.03%]
儿童及其护理人员镰形细胞疾病负担：照顾者关于儿童与健康相关的生活质量及就学经历、照顾者负担的报告以及它们与血栓形成性危机频率的关系
Andrew Campbell,Avery A Rizio,Kristen L McCausland et al.
Andrew Campbell et al.
Background: Children with sickle cell disease (SCD) experience a multiplex of disease-related symptoms and complications, including vaso-occlusive crises (VOCs), episodes characterized by extreme pain. ...
Psychometric Analysis of the Patient-Reported Hypoparathyroidism Symptom Diary Symptom Subscale Using Data from Two Clinical Trials [0.03%]
基于两项临床试验数据的低甲状旁腺素血症症状日记量表患者报告结果测量工具的症状亚量表的心理测量学分析
Lauren Nelson,Steven W Ing,Mishaela R Rubin et al.
Lauren Nelson et al.
Purpose: The hypoparathyroidism symptom diary (HypoPT-SD) is a disease-specific patient-reported outcome (PRO) tool comprising a 7-item symptom subscale, a 4-item impact subscale and 1-item anxiety, and sadness or depress...
Quantitative and Qualitative Exploration of Meaningful Change on the Vineland Adaptive Behavior Scales (Vineland™-II) in Children and Adolescents with Autism Without Intellectual Disability Following Participation in a Clinical Trial [0.03%]
自闭症儿童参与临床试验后威尼尔德适应行为量表（第二版）测评结果显著变化的量化及定性研究
Susanne Clinch,Stacie Hudgens,Elizabeth Gibbons et al.
Susanne Clinch et al.
Purpose: The VinelandTM Adaptive Behavior Scale is often used in autism spectrum disorder (ASD) trials. The Adaptive Behavior Composite Score (VABS-ABC) is the standardized overall score (the average of the Socialization,...
Qualitative Exploration in Exit Interviews of Changes Observed in Clinical Trials for Individuals with Autism Spectrum Disorder Without Intellectual Disability [0.03%]
自闭症谱系障碍且无智力障碍患者临床试验退出访谈中的定性探索研究
Michael Chladek,Claire Burbridge,Elizabeth Gibbons et al.
Michael Chladek et al.
Purpose: To explore, from the perspective of Study Partners (SPs; eg, caregivers) of clinical trial participants with autism spectrum disorder (ASD), any changes experienced in socialization and communication over the cli...
Impact of Ravulizumab on Patient Outcomes and Quality of Life in Generalized Myasthenia Gravis [0.03%]
Ravulizumab对常规型重症肌无力患者结局和生活质量的影响
Carlo Antozzi,Renato Mantegazza
Carlo Antozzi
Myasthenia gravis (MG) is an autoimmune ion channel disorder in which antibodies to different end-plate antigens impair neuromuscular transmission, ultimately leading to muscle weakness and fatigability. In about 85% of patients with MG, au...
Christian Espinoza-Vinces,Rafael Villino-Rodríguez,Ainhoa Atorrasagasti-Villar et al.
Christian Espinoza-Vinces et al.
Introduction: Parkinson's disease (PD) is a chronic and progressive neurodegenerative condition due to the degeneration of nigral dopaminergic cells. Both motor and non-motor symptoms (NMS) of PD produce a marked impairme...
Generating Items for Measuring Needs-Based Quality of Life and Self-Perceived Health Inequity in Patients with Multimorbidity: Development of the MultiMorbidity Questionnaire (MMQ) [0.03%]
多病共存生活质量及自我感知健康不平等测量项目的生成：多病共存问卷（MMQ）的编制
Kristine Henderson Bissenbakker,Anne Møller,Alexandra Brandt Ryborg Jønsson et al.
Kristine Henderson Bissenbakker et al.
Purpose: To describe the processes of developing domains and items for the MultiMorbidity Questionnaire (MMQ), a multimorbidity-specific PROM for the assessment of Needs-based QoL. ...