Health-Related Quality of Life in Long COVID: Mapping the Condition-Specific C19-YRSm Measure Onto the EQ-5D-5L [0.03%]
长期新冠肺炎的健康相关生活质量：将条件特定的C19-YRS量表映射到EQ-5D-5L上
Adam B Smith,Darren C Greenwood,Paul Williams et al.
Adam B Smith et al.
Background: Long COVID (LC) is a clinical syndrome with persistent, fluctuating symptoms subsequent to COVID-19 infection. LC has significant detrimental effects on health-related quality of life (HRQoL), activities of da...
Evaluation of the Content Validity of the COVID-19 Symptoms Daily Diary [0.03%]
COVID-19症状每日日记的内容效度评价
Jennifer Dine,Yanfen Guan,Mirline Milien et al.
Jennifer Dine et al.
Introduction: The COVID-19 Symptoms Daily Diary (CSDD) is a patient-reported outcome measure designed to assess the severity of core COVID-19 symptoms in clinical trials. The preliminary version of the CSDD was developed ...
Is It Time Alpha-1 Antitrypsin Deficiency Had a Specific Patient Reported Outcome Measure? A Review [0.03%]
α1抗胰蛋白酶缺乏症是否需要一个专门的患者报告结局量表？一项综述
Joshua De Soyza,Hung-Yeh Chien,Adeola Ayodotun Onasanya et al.
Joshua De Soyza et al.
Alpha-1 antitrypsin deficiency (AATD) is a rare cause of chronic lung and liver disease without its own patient reported-outcome measure (PROM). PROMs for Chronic Obstructive Pulmonary Disease (COPD) are commonly used instead, but AATD diff...
Utilities Associated with the Treatment of Growth Hormone Deficiency (GHD): A Time Trade-off (TTO) Study in the UK and Canada [0.03%]
英国和加拿大生长激素缺乏（GHD）治疗相关效用的Time Trade Off研究
Susan Kirsch,Gary Butler,Lasse de Fries Jensen et al.
Susan Kirsch et al.
Purpose: Growth hormone deficiency (GHD) causes decreased growth rate in children, resulting in short stature in childhood and adulthood. Daily subcutaneous injections with growth hormone (GH) have been standard treatment...
"Time to Be Young?" - A Qualitative Study Exploring the Impact of Attending a Course for Young Carers Who Have a Parent with Dementia [0.03%]
“展望青春？”—一项关于照护患痴呆症家长的年轻人的相关课程影响的定性研究
Celine Haaland-Johansen,Ingebjørg Haugen,Anne Marie Mork Rokstad
Celine Haaland-Johansen
Purpose: Being a young carer of a parent with dementia can be challenging, with many carers undertaking various practical and caring tasks. The weekend course Time to be young? gathers young carers, aiming to support them...
The Role of Medical Helicopter and Ground Medical Crews in Polytrauma Management: An Evaluative Perspective [0.03%]
复合伤救治中医疗直升机与地面救护力量角色初探
Mihaela Anghele,Virginia Marina,Aurelian-Dumitrache Anghele et al.
Mihaela Anghele et al.
Introduction: Polytrauma remains a major global health challenge, with rapid intervention being critical for survival, especially during the "Golden Hour". This study examines the impact of Helicopter Emergency Medical Se...
Development and Validation of the Self-Management Questionnaire for Patients with Lower Extremity Arterial Disease Who Underwent Endovascular Revascularization [0.03%]
下肢动脉病经导管血管成形术后患者自我管理量表的编制及验证
Meihong Shi,Xi Yang,Pan Song et al.
Meihong Shi et al.
Introduction: To develop and psychometrically validate the Self-management Questionnaire for Patients with Lower Extremity Arterial Disease Patients Who Underwent Endovascular Revascularization (LESQ). ...
Patients with Chronic Kidney Disease: Background Factors Associated with Experienced Health Status and Life Satisfaction [0.03%]
慢性肾脏病患者的背景因素与经历的健康状况和生活满意度之间的关联性研究
Mari Pesonen,Aino Vesikansa,Juha Mehtälä et al.
Mari Pesonen et al.
Purpose: The prevalence of chronic kidney disease (CKD) is increasing and CKD often goes undiagnosed and untreated until its later stages when irreversible damage has occurred. Patients with CKD have been reported to have...
Practices for Reporting Scale Structure and Summarizing Scores in Studies Using FAMCARE Scale to Assess Caregiver Satisfaction with Cancer Care: A Scoping Review [0.03%]
基于FAMCARE量表评估癌症照护满意度的研究中报告量表结构和总结分数的实践：系统综述式研究
Kristin Vassbotn Guldhav,John Roger Andersen,Kari Eldal et al.
Kristin Vassbotn Guldhav et al.
Background: Satisfaction with care is a concept quantified through diverse measurement tools. However, studies have indicated that measuring satisfaction is challenging due to the construct's multidimensional expression. ...
Development and Content Validation of the Patient's Qualitative Assessment of Treatment - Real-World (PQAT-RW): An Instrument to Evaluate Benefits and Disadvantages of Treatments in Real-World Settings [0.03%]
患者治疗的定性评价-真实世界(PQAT-RW)工具的开发和内容验证：一种评估真实世界治疗优劣的仪器
Aude Roborel de Climens,Amy Findley,Denise P Bury et al.
Aude Roborel de Climens et al.
Purpose: Quantifying patient-perceived benefits and disadvantages of treatments in a real-world setting is increasingly important in healthcare decision-making. The Patient's Qualitative Assessment of Treatment (PQAT) ass...