Agreement Between Child Self- and Parent Proxy-Reports of Health-Related Quality of Life in Spinal Muscular Atrophy: Preliminary Insights from a Nationwide Patient Registry in Germany [0.03%]
德国全国患者登记处脊髓性肌萎缩症儿童自我报告与父母代理报告的健康相关生活质量的一致性的初步见解
Erik Landfeldt,Berenike Leibrock,Justine Hussong et al.
Erik Landfeldt et al.
Objective: The objective of this pilot study was to examine the agreement between child self- and parent proxy-assessment of health-related quality of life (HRQoL) in spinal muscular atrophy (SMA) in the era of disease-mo...
Translation and Cross-Cultural Adaptation into French of the Mother-to-Infant Bonding Scale [0.03%]
母子关系量表的法语翻译及跨文化改编研究
Anthony Pernoud,Alyx Taylor,Roberta De Luca et al.
Anthony Pernoud et al.
Purpose: Patient-reported outcome measures (PROMs) are relevant for assessing the bond between a mother and her child, both before and after childbirth. Several questionnaires have been developed with the Mother-to-Infant...
Pharmacist Led Telephonic Insulin Titration: A Pilot Study on A1C Control in a Family Medicine Residency [0.03%]
电话胰岛素调节在家庭医学实习中的A1C控制：药师主导的初步研究
Priya Raghavan,Shaunta Chamberlin,Robert Eric Heidel et al.
Priya Raghavan et al.
Psychometric Validation of Patient Satisfaction Assessment Tool for Alternative Medicine Healthcare Facility in India [0.03%]
印度替代医学医疗机构患者满意度评估工具的 psychometric 验证
Divya Taneja,Renu Mittal,Shashank Atrey et al.
Divya Taneja et al.
Purpose: Good health status has traditionally been linked to greater levels of patient satisfaction. With the emergence and integration of various medical modalities, including Homeopathy, Ayurveda, and other complementar...
Health-Related Quality of Life in Long COVID: Mapping the Condition-Specific C19-YRSm Measure Onto the EQ-5D-5L [0.03%]
长期新冠肺炎的健康相关生活质量：将条件特定的C19-YRS量表映射到EQ-5D-5L上
Adam B Smith,Darren C Greenwood,Paul Williams et al.
Adam B Smith et al.
Background: Long COVID (LC) is a clinical syndrome with persistent, fluctuating symptoms subsequent to COVID-19 infection. LC has significant detrimental effects on health-related quality of life (HRQoL), activities of da...
Evaluation of the Content Validity of the COVID-19 Symptoms Daily Diary [0.03%]
COVID-19症状每日日记的内容效度评价
Jennifer Dine,Yanfen Guan,Mirline Milien et al.
Jennifer Dine et al.
Introduction: The COVID-19 Symptoms Daily Diary (CSDD) is a patient-reported outcome measure designed to assess the severity of core COVID-19 symptoms in clinical trials. The preliminary version of the CSDD was developed ...
Is It Time Alpha-1 Antitrypsin Deficiency Had a Specific Patient Reported Outcome Measure? A Review [0.03%]
α1抗胰蛋白酶缺乏症是否需要一个专门的患者报告结局量表？一项综述
Joshua De Soyza,Hung-Yeh Chien,Adeola Ayodotun Onasanya et al.
Joshua De Soyza et al.
Alpha-1 antitrypsin deficiency (AATD) is a rare cause of chronic lung and liver disease without its own patient reported-outcome measure (PROM). PROMs for Chronic Obstructive Pulmonary Disease (COPD) are commonly used instead, but AATD diff...
Utilities Associated with the Treatment of Growth Hormone Deficiency (GHD): A Time Trade-off (TTO) Study in the UK and Canada [0.03%]
英国和加拿大生长激素缺乏（GHD）治疗相关效用的Time Trade Off研究
Susan Kirsch,Gary Butler,Lasse de Fries Jensen et al.
Susan Kirsch et al.
Purpose: Growth hormone deficiency (GHD) causes decreased growth rate in children, resulting in short stature in childhood and adulthood. Daily subcutaneous injections with growth hormone (GH) have been standard treatment...
"Time to Be Young?" - A Qualitative Study Exploring the Impact of Attending a Course for Young Carers Who Have a Parent with Dementia [0.03%]
“展望青春？”—一项关于照护患痴呆症家长的年轻人的相关课程影响的定性研究
Celine Haaland-Johansen,Ingebjørg Haugen,Anne Marie Mork Rokstad
Celine Haaland-Johansen
Purpose: Being a young carer of a parent with dementia can be challenging, with many carers undertaking various practical and caring tasks. The weekend course Time to be young? gathers young carers, aiming to support them...
The Role of Medical Helicopter and Ground Medical Crews in Polytrauma Management: An Evaluative Perspective [0.03%]
复合伤救治中医疗直升机与地面救护力量角色初探
Mihaela Anghele,Virginia Marina,Aurelian-Dumitrache Anghele et al.
Mihaela Anghele et al.
Introduction: Polytrauma remains a major global health challenge, with rapid intervention being critical for survival, especially during the "Golden Hour". This study examines the impact of Helicopter Emergency Medical Se...