Health Supervision for Children With 22q11.2 Deletion Syndrome: Clinical Report [0.03%]
染色体22q11.2缺失综合征患儿的健康监测：临床报告
Angela E Scheuerle,Timothy A Geleske,Nadia Merchant et al.
Angela E Scheuerle et al.
22q11.2 deletion syndrome is the most frequent chromosomal microdeletion syndrome, with an estimated frequency of about 1/4000 in children younger than 1 year. Associated features in neonates and infants are conotruncal heart defects, inter...
Guidance for Caring for Infants and Children With Trisomy 13 and Trisomy 18: Clinical Report [0.03%]
染色体三体13和18患儿的护理指南：临床报告
Alaina K Pyle,Thomas N George,James J Cummings et al.
Alaina K Pyle et al.
Over the last several decades, there has been a steady increase in medical and surgical interventions provided for infants and children with trisomy 13 or trisomy 18 (chromosomal syndromes associated with a range of congenital anomalies and...
Minimum Standards for Medical Care of Youth Incarcerated Across the United States [0.03%]
美国各地关押的青少年的医疗护理最低标准
Tess L Kelly,Joshua Dankoff,Elizabeth Barnert
Tess L Kelly
Background and objectives: The study sought to identify strengths and gaps in state standards for medical care in juvenile confinement facilities across the United States to support the development of uniform legislated s...
April McNeill-Johnson,Zuri Hudson,Brittany Moore et al.
April McNeill-Johnson et al.
Objective: The objective of this study was to explore the health needs and previous health care experiences of youth detained in juvenile detention, addressing the gap in understanding their health care priorities and nee...
Hospitalizations by Children With Medical Complexity From 2009 to 2022 [0.03%]
2009至2022年患有复杂疾病的住院儿童情况
JoAnna K Leyenaar,Seneca Freyleue,Mary Arakelyan et al.
JoAnna K Leyenaar et al.
Background and objectives: Children with medical complexity (CMC) have multifaceted health care needs and are more likely to be hospitalized than children without medical complexity. This study examined the number and pro...
Collaborative Model of Care for Children With Medical Complexity: A Randomized Clinical Trial [0.03%]
针对疾病复杂儿童的协作诊疗模式：随机临床试验
Savithri Nageswaran,Douglas Easterling,Jamie E Skaar et al.
Savithri Nageswaran et al.
Background and objectives: Improving home health (HH) care for children with medical complexity (CMC) is critical. We developed ICollab, a care model involving collaboration between a children's hospital's complex care cl...
Disparities in Nirsevimab Uptake Across a Pediatric Primary Care Network [0.03%]
在一个儿科基层医疗网络中尼塞维单抗的使用差异
Mahaa M Ahmed,Ziyi Wang,Torsten Joerger et al.
Mahaa M Ahmed et al.
Objective: Nirsevimab, a monoclonal antibody for respiratory syncytial virus (RSV) prophylaxis, debuted during the 2023-2024 RSV season. The objective of this study was to examine the distribution of nirsevimab to determi...
Improving Interpreter Presence for Pediatric Hospital Medicine Patients and Families [0.03%]
提高儿科医院医务人员和家属的口译服务覆盖率
Joelle Kane,Laura Rangel Rodriguez,Liezelle Lopez et al.
Joelle Kane et al.
Background: For hospitalized patients and families who speak languages other than English (LOE), consistent interpreter-mediated communication is necessary to ensure equitable health care delivery. Despite the availabilit...
Etilefrine: A Novel Treatment for Refractory, Life-Threatening Chylothorax in the Newborn [0.03%]
依替福林治疗新生儿难治性危险胸导管渗漏症病例报告
Sixtine Gilliot,Kévin Le Duc,Caroline Chopinet et al.
Sixtine Gilliot et al.
There are few evidence-based treatment options for chylothorax in newborns. We report on 5 cases of preterm newborn infants who received drainage and continuous etilefrine infusion for clinically significant, refractory chylothorax. Irrespe...
Lauren N Jennings,Rafael Escandon,Douglas S Diekema et al.
Lauren N Jennings et al.