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Social science & medicine (1982). 2025 Jun 5:381:118300. doi: 10.1016/j.socscimed.2025.118300 Q15.02024

Rural-urban living with spinal cord injury, impact health, quality of life and integration - Experiences from Denmark

脊髓损伤人群的城乡共存:对健康、生活质量及融入社会的影响——来自丹麦的经验 翻译改进

Bodil Bjoernshave Noe  1, Anne Hoejgaard  2, Frederik Skovbjerg  3, Randi Steensgaard  4, Egon Bjoernshave Noe  5

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作者单位

  • 1 Department for Applied Health Science, University College South Denmark, Degnevej 16, 6705, Esbjerg Ø, Denmark. Electronic address: bbno@ucsyd.dk.
  • 2 National Center for Shared Decision Making in Denmark, Lillebaelt Hospital, Beridderbakken 4, 7100, Vejle, Denmark. Electronic address: anne.hojgaard@rsyd.dk.
  • 3 Spinal Cord Injury Center of Western Denmark, Hammel Neurorehabilitation Center and University Research Clinic, Central Denmark Region, Soendersoeparken 11, 8800, Viborg, Denmark. Electronic address: freskv@rm.dk.
  • 4 Specialized hospital for Polio and Accident Victims, Evald Krogs Gade 4C, 8000, Aarhus C, Denmark. Electronic address: rst@specialhospitalet.dk.
  • 5 Head of the Center for Rural District Research, Faculty of Social Sciences, Department of Political Science, University of Southern Denmark, Degnevej 14, 6705, Esbjerg Ø, Denmark. Electronic address: enoe@sam.sdu.dk.
  • DOI: 10.1016/j.socscimed.2025.118300 PMID: 40505499

    摘要 中英对照阅读

    Denmark has a welfare system and relatively small geographical distances. However, the systems are strained, especially in rural areas, which can impact the lives of persons with Spinal Cord Injury (SCI) and increase inequality. This study explores the lived experiences of individuals with SCI living in rural and urban areas regarding their perceived health, quality of life, and integration by applying a phenomenological-hermeneutic approach using reflexive thematic analysis of sixteen semi-structured interviews with persons previously admitted to the SCI Center of Western Denmark. Three themes were developed: Place of Dwelling Matters, Fight for Rights, and Relations Count. Individuals with SCI in Denmark view their place of dwelling as vital. While they report good health and access to hospital care, they face significant challenges in navigating the municipal health and social systems, with wide variations in support. Those in poorer rural areas, often with limited personal and economic resources, experience the greatest unmet needs. Trusting relationships with municipal assessors are essential to ensure health, quality of life, and integration. The strained municipal economy shifts responsibilities to civil society. However, individuals with limited personal skills in rural areas benefit less from these initiatives. Despite equal rights under the welfare state, rural residents face inequalities due to financial constraints and demographic trends. These disparities exacerbate a growing rural-urban divide in personal resources and access to services, highlighting the need for improved organization of the Danish welfare system as the system's limitations disproportionately affect the most vulnerable individuals in rural areas.

    Keywords: Inequality; International classification of functioning and disability; Municipal healthcare; Rehabilitation; Rural-urban; Spinal cord injury; Welfare system.

    Keywords:spinal cord injury; rural-urban living; quality of life

    丹麦拥有福利体系,并且地理距离相对较小。然而,这些系统在农村地区面临着压力,这可能会影响脊髓损伤(SCI)患者的日常生活并加剧不平等现象。本研究通过应用现象学-诠释学方法对十六名先前被西方丹麦脊髓损伤中心收治的人员进行半结构化访谈的主题反思分析,探讨了居住在城乡地区的SCI患者对其健康状况、生活质量以及融合度的看法。研究开发出三个主题:居住地很重要、为权利而奋斗和人际关系重要。丹麦的SCI患者认为他们的居住地至关重要。尽管他们报告有良好的健康状况并能够获得医院护理,但他们面临着在市政卫生和社会系统中导航的重大挑战,并且支持水平差异很大。那些生活在贫困农村地区的人往往个人资源和经济资源有限,他们的需求未得到满足的情况最为严重。与市政评估员建立信任关系对于确保其健康、生活质量以及融合至关重要。由于市政经济紧张,责任转向民间社会。然而,在农村地区拥有较少个人技能的人从这些倡议中获益较少。尽管在福利国家下享有平等权利,但由于财政限制和人口趋势,农村居民面临不平等现象。这种差异加剧了个人资源和个人服务获取的城乡差距,突显出需要改进丹麦福利系统的组织方式,因为系统局限性对农村地区最脆弱个体的影响不成比例。

    关键词: 不平等;国际功能和残疾分类;市政医疗保健;康复;城乡;脊髓损伤;福利体系。

    关键词:脊髓损伤; 城乡居住; 生活质量

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    期刊名:Social science & medicine

    缩写:SOC SCI MED

    ISSN:0277-9536

    e-ISSN:1873-5347

    IF/分区:5.0/Q1

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