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Frontiers in public health. 2025 Mar 26:13:1536753. doi: 10.3389/fpubh.2025.1536753 Q13.42025

Stakeholders' engagement for improved health outcomes: a research brief to design a tool for better communication and participation

改进卫生结果的参与方互动研究简介:开发更好的交流和参与工具 翻译改进

Giuseppe Pellegrini  1, Chiara Lovati  1

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  • 1 Observa Science in Society, Vicenza, Italy.
  • DOI: 10.3389/fpubh.2025.1536753 PMID: 40206161

    摘要 中英对照阅读

    Technological progress in healthcare is creating a complexity of novelties, from new roles and challenges, to new concerns about inclusivity, equity and data privacy. Communication among healthcare actors becomes a very important factor for adaptation and allows for the improvement of medical research and treatment. Active patient involvement and stakeholder engagement in health research become essential to better information and diagnostic management and communication in a framework of ever-expanding resources defined by the rise of artificial intelligence and other technologies. At the intersection of healthcare, technology and citizenship, the EU-funded Hereditary project plans to facilitate trough Health Social Laboratories (HSL) a multi-level dialog between stakeholders, improving its health outcomes while accounting for the challenges and risks of communication in participatory approaches. This study aims to understand the main issues to address in developing an effective stakeholder collaborative relationship with a focus on communication in a technology-driven context such as the Hereditary project and its health information integration processes. It specifically describes the findings of a literature review, an exploratory context analysis carried out through interviews with 9 key informants from four research partner locations (four interviewees in Italy, two in the Netherlands, one in Spain, and two in the United States), and the transformation of these findings into a prospective laboratory methodology. Our approach aims to highlight the importance of including diverse perspectives in shaping healthcare communication innovation. Through a participative model, researchers can navigate complex ethical and practical healthcare communication challenges more effectively, and foster solutions that are in alignment with stakeholders' needs.

    Keywords: health communication; health technology design; inclusive healthcare; responsible innovation; stakeholder engagement.

    Keywords:stakeholders engagement; health outcomes; communication tool; participatory research

    医疗保健领域的技术进步正在创造一系列复杂的新事物,从新的角色和挑战到关于包容性、公平性和数据隐私的新担忧。医疗保健从业者之间的沟通变得极其重要,它有助于医学研究和治疗的改进。在人工智能和其他技术不断发展的资源框架下,患者积极参与以及利益相关者的参与成为更好地进行信息管理和诊断管理及交流的关键要素。在医疗卫生、技术和公民身份交汇处,欧盟资助的Hereditary项目计划通过健康社会实验室(HSL)促进各利益相关者之间的多层次对话,在考虑到参与式方法中的沟通挑战和风险的情况下改善其健康结果。本研究旨在了解在以Hereditary项目及其健康信息整合流程为背景的技术驱动环境中发展有效的利益相关者协作关系时需要解决的主要问题,重点是沟通方面的问题。具体来说,本文描述了文献回顾、通过与来自四个研究合作伙伴地点的9位关键受访者的访谈进行的探索性环境分析的结果,以及将这些发现转化为前瞻性实验室方法的过程。我们的方法旨在强调在医疗保健沟通创新中纳入多元视角的重要性。通过参与式模型,研究人员可以更有效地应对复杂的伦理和实践问题,并促进符合利益相关者需求的解决方案。

    关键词:健康传播;医疗技术设计;包容性医疗;负责任的创新;利益相关者的参与。

    关键词:利益相关者参与; 健康结果; 沟通工具; 参与式研究

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    期刊名:Frontiers in public health

    缩写:FRONT PUBLIC HEALTH

    ISSN:N/A

    e-ISSN:2296-2565

    IF/分区:3.4/Q1

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