首页 正文

Journal of the American Medical Informatics Association : JAMIA. 2024 Dec 1;31(12):3032-3041. doi: 10.1093/jamia/ocae214 Q14.62025

User guide for Social Determinants of Health Survey data in the All of Us Research Program

全民健康计划社会决定因素健康调查用户指南 翻译改进

Theresa A Koleck  1, Caitlin Dreisbach  2  3, Chen Zhang  2, Susan Grayson  1, Maichou Lor  4, Zhirui Deng  1, Alex Conway  1, Peter D R Higgins  5, Suzanne Bakken  6  7  8

作者单位 +展开

作者单位

  • 1 School of Nursing, University of Pittsburgh, Pittsburgh, PA 15261, United States.
  • 2 School of Nursing, University of Rochester, Rochester, NY 14620, United States.
  • 3 Goergen Institute for Data Science, University of Rochester, Rochester, NY 14627, United States.
  • 4 School of Nursing, University of Wisconsin-Madison, Madison, WI 53705, United States.
  • 5 School of Medicine, University of Michigan, Ann Arbor, MI 48109, United States.
  • 6 School of Nursing, Columbia University, New York, NY 10032, United States.
  • 7 Department of Biomedical Informatics, Columbia University, New York, NY 10032, United States.
  • 8 Data Science Institute, Columbia University, New York, NY 10027, United States.
  • DOI: 10.1093/jamia/ocae214 PMID: 39190874

    摘要 中英对照阅读

    Objectives: Integration of social determinants of health into health outcomes research will allow researchers to study health inequities. The All of Us Research Program has the potential to be a rich source of social determinants of health data. However, user-friendly recommendations for scoring and interpreting the All of Us Social Determinants of Health Survey are needed to return value to communities through advancing researcher competencies in use of the All of Us Research Hub Researcher Workbench. We created a user guide aimed at providing researchers with an overview of the Social Determinants of Health Survey, recommendations for scoring and interpreting participant responses, and readily executable R and Python functions.

    Target audience: This user guide targets registered users of the All of Us Research Hub Researcher Workbench, a cloud-based platform that supports analysis of All of Us data, who are currently conducting or planning to conduct analyses using the Social Determinants of Health Survey.

    Scope: We introduce 14 constructs evaluated as part of the Social Determinants of Health Survey and summarize construct operationalization. We offer 30 literature-informed recommendations for scoring participant responses and interpreting scores, with multiple options available for 8 of the constructs. Then, we walk through example R and Python functions for relabeling responses and scoring constructs that can be directly implemented in Jupyter Notebook or RStudio within the Researcher Workbench. Full source code is available in supplemental files and GitHub. Finally, we discuss psychometric considerations related to the Social Determinants of Health Survey for researchers.

    Keywords: big data; electronic data processing; measurement; social determinants of health.

    Keywords:social determinants of health; survey data; all of us research program

    目标: 将社会决定因素纳入健康结果研究中,可以使研究人员能够研究健康不平等现象。All of Us 研究计划有可能成为获取社会决定因素数据的丰富来源。然而,为了通过提高研究人员在 All of Us Research Hub Researcher Workbench 上的数据使用能力来为社区创造价值,需要制定易于使用的评分和解释 All of Us 社会决定因素调查的建议。我们创建了一份用户指南,旨在向研究者提供有关社会决定因素调查的概览、评分和解读参与者回复的建议以及可以直接在 Jupyter Notebook 或 RStudio 中实施的 R 和 Python 函数。

    目标受众: 这份用户指南的目标是 All of Us Research Hub Researcher Workbench 的注册用户,这是一个支持分析 All of Us 数据的基于云的平台。这些用户目前正在或计划使用社会决定因素调查进行分析。

    范围: 我们介绍了作为社会决定因素调查的一部分评估的 14 种构建,并总结了其操作化情况。我们提出了 30 条文献支持的建议,用于评分参与者回复和解释分数,其中针对 8 种构建提供了多个选项。然后,我们将演示如何使用 Jupyter Notebook 或 RStudio 内部 Researcher Workbench 中直接实施的示例 R 和 Python 函数来重新标记回复和评分构建。完整的源代码可以在补充文件和 GitHub 上找到。最后,我们讨论了社会决定因素调查对研究者的心理测量考虑。

    关键词: 大数据;电子数据处理;衡量;社会决定因素。

    关键词:健康的社会决定因素; 调查数据; 所有人研究计划

    翻译效果不满意? 用Ai改进或 寻求AI助手帮助 ,对摘要进行重点提炼
    Copyright © Journal of the American Medical Informatics Association : JAMIA. 中文内容为AI机器翻译,仅供参考!

    相关内容

    期刊名:Journal of the american medical informatics association

    缩写:J AM MED INFORM ASSN

    ISSN:1067-5027

    e-ISSN:1527-974X

    IF/分区:4.6/Q1

    文章目录 更多期刊信息

    全文链接
    引文链接
    复制
    已复制!
    推荐内容
    User guide for Social Determinants of Health Survey data in the All of Us Research Program